Posted by Kate Murphy on February 22nd, 2007
Although religious and spiritual support improves quality of life for people who are dying of cancer, half of those patients receive no support from their religious communities and nearly three quarters say they receive little or no support for their spiritual needs from the medical community. Forty-two percent said that they had religious or spiritual support from neither a religious community nor the medical care system.
As part of the Coping with Cancer study, researchers interviewed patients with advanced cancer whose cancer had progressed despite chemotherapy and who were expected to live less than a year. The research team asked about the importance of religion and spirituality to them, their personal participation in religious services and prayer, and the support received both from religious communities and medical staff, including chaplains.
They also evaluated quality of life and the patients’ ways of religious coping. Patients were asked if they wanted all measures to extend life even if death were imminent and whether they had advanced directives in place including a living will or a do-not-resuscitate order.
Nearly all — 9 out of 10 — of the patients considered religion or spirituality important, 68% said it was very important. Fifty-six percent attended religious services at least once a month prior to their cancer diagnosis, although attendance fell to 44% after diagnosis. Nearly half prayed or performed some personal religious activity before diagnosis and that rose to 61% after diagnosis.
African Americans were more likely to consider religion very important than whites. They were also much more likely to report that they were supported by their religious communities than either whites or Hispanics.
There was a significant correlation between overall spiritual support from religious communities and the medical staff and quality of life. Religious and spiritual support improved quality of life — an important goal for patients near the end of their lives.
People for whom religion was very important were twice as likely to want all measures to extend their lives.
Tracy A. Balboni and her colleagues report the results of their study in the February 10, 2007 issue of the Journal of Clinical Oncology.
The study authors reflected on the barriers that medical staff have in providing spiritual support to patients without imposing religious views. However, they concluded that given the importance of spiritual support to quality of life, health care professionals should find ways to provide that support to patients. They wrote,
Methods for meeting patient spiritual needs should be explored, and the impact of such interventions should be assessed. In addition, the appropriate roles of various health care providers (eg, physicians,
nurses) in managing spiritual needs should be clarified. Although incorporating R/S into care requires delicacy, attention to tihis dimension of health has the potential to enhance patient wellbeing at the end of life.
Writing in an editorial in the same issue of the Journal of Clinical Oncology, Betty Ferrell offers three steps that oncologists can take to improve opportunities for patients to receive religious and spiritual support.
- Master a basic assessment of spirituality that focuses on patients’ faith and beliefs, the importance of faith in their lives, whether they have a religious or spiritual community that supports them, and, finally, how they want the healthcare system should address their spiritual needs.
- Assess their own spiritual and religious beliefs, including their understanding of cultural diversity and the religious language they use in discussing spiritual issues with patients.
- Advocate for maintenance and expansion of chaplaincy programs, especially in light of decreasing budgets. Include chaplains in interdisciplinary care conferences and advanced directives planning.
An article about the study appears in Reuters Health.