Our Advocates Impact

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Fight Colorectal Cancer isn’t just passionate about research and advocacy. We’re effective. Sometimes our victories are a direct result of one-on-one relationships formed and nurtured over the years. Other times successes reflect the collective power of individual advocates working together.

Just take a look at some of the ways we’ve impacted research and policy over the years.


 

Policy

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Colorectal Cancer Awareness Month Proclamations

Our advocates are intentional about March being known as Colorectal Cancer Awareness Month. We raise awareness of the second-leading cause of cancer deaths through as many channels as possible – including government proclamations.

In 2014 – President Obama declared March as Colorectal Cancer Awareness Month – a first in 13 years! Thanks to OUR ADVOCATES and support from members of Congress, our petitions were heard!

Advocates from ALL 50 STATES submitted requests to their governors to issue proclamations recognizing March 2014 as Colorectal Cancer Awareness Month, as part of the Blue Star States campaign with Colon Cancer Alliance. As a result, 46 states issued proclamations and two states issued letters. This was the first time all 50 states submitted requests.

Federally, in 2013, the Senate passed, for the first time since 1999, a resolution thanks to ongoing relationships OUR ADVOCATES cultivated with their senators. A supporter of Fight Colorectal Cancer, Rep. Donald Payne Jr. (D-NJ) introduced a similar resolution in the House.


Bills For Colorectal Cancer Screening

Over the years, Fight Colorectal Cancer has worked with representatives to introduce bills that specifically reduce costs that prevent colorectal cancer screening and support programs that fund and promote colorectal cancer prevention and research.

Take a look at the legislation we’ve sponsored over the years.


Impacting the Swing Votes

Since 2005, our advocates have met with elected officials to share their stories and ask for legislation that prevents colorectal cancer. Often, we see representatives and senators vote in favor of research funding or co-sign on legislation AFTER meeting with OUR ADVOCATES at Call-on Congress.

For example, in 2011, the senate held a critical budget vote just days after our Call-on Congress and six swing-vote senators voted in favor of cancer research funding restoration after hearing from OUR ADVOCATES. In 2013, just a month after the introduction of a colorectal cancer screening bill, more than half of the cosponsors could be attributed to the advocacy of OUR ADVOCATES.


Restoring Medical Research Funding

Creating change in government and government funding can take months … even years. Our staff and advocates stay engaged with Members of Congress each day to continue complex conversations and create change. We take the charge at our annual Call-on Congress each March. We also partner with other organizations advocating for medical research funding throughout the year. We join with partner organizations and ask for federal funding in support of:

    • Centers for Disease Control and Prevention (CDC) – Colorectal Cancer Control Program (CRCCP)
    • Department of Defense (DoD) – Peer Reviewed Cancer Research Program (PRCRP)
    • National Cancer Institute (NCI)

Big Meetings. Big Impact.

Fight Colorectal Cancer leaders are often invited to meetings on the Hill when leaders desire a patient voice and perspective. We’ve represented colorectal cancer patients in several high-profile meetings:

  • Meeting at the White House to discuss new screening goal of 80% by 2018 and H.R. 1070 with executive staff. Meeting attended by Fight Colorectal Cancer, Rep. Donald Payne, Jr., American Cancer Society, ACS CAN and the GI societies in March 2014.
  • Spoke at the National Press Club during the “80 by 2018″ launch in March 2014.
  • Advocates (many of them survivors) toured the White House as part of Colorectal Cancer Awareness Month in March 2014.
  • Meeting with Secretary of State Kathleen Sebelius on the Affordable Care Act rollout in Summer 2013.
  • We teamed up with three other groups to host a high-profile briefing with Dr. Thomas Frieden, Director of the CDC and others to push for a national colorectal screening program in spring of 2011.
  • We were one of 50 groups invited to hear First Lady Michelle Obama and Dr. Jill Biden announce the startup of the Affordable Care Act’s in summer 2010.

Research & Treatment

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Colorectal Cancer added to Department of Defense research programs

Thanks to years of ongoing lobbying from OUR ADVOCATES, colorectal cancer was added to the Department of Defense (DoD) research program in 2010. Read the history of how we achieved this victory.


Steering National Research Priorities

Our board members, staff and RATS group members sit on committees and help steer priorities and objectives for national research initiatives. Over the years, our colorectal cancer advocates have impacted the direction of:

    • The National Cancer Institute (NCI)
    • Department of Defense (DoD) research panel
    • National Comprehensive Cancer Network (NCCN)
    • Food & Drug Administration (FDA)

Leading Voice for Cancer Patients

After years of reporting on drug shortages, the national media caught attention of national drug shortages in 2011. Reuters and other media sources contacted Fight Colorectal Cancer for statements regarding the shortage of 5FU, a drug commonly prescribed for colorectal cancer patients.


Funding Ground-Breaking Research

Our Lisa Fund administers grants in partnership with the American Association for Cancer Research (AACR). Over the years we’ve awarded grants to researchers undergoing cutting-edge research including KRAS testing and other targeted therapies.

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