Ellen Sigal

Today, the Government Accountability Office (GAO), announced the appointment of 19 members to the Board of Governors for the new Patient-Centered Outcomes Research Institute (PCORI or the Institute). The Institute was created by the Affordable Care Act to set comparative effectiveness research priorities, establish research methods, and communicate research results to the public.

The PCORI Board appointed today includes three patient and consumer representatives. One of those representatives is Ellen Sigal, PhD, Chairperson and founder of Friends of Cancer Research, a cancer research think tank and advocacy organization. Ms. Sigal’s term on the Board will expire in September 2016.

The Colorectal Cancer Coalition is a member of Friends of Cancer Research and congratulates Ms. Sigal on her appointment. Nancy Roach, founder and Colorectal Cancer Coalition Board Chair released a statement congratulating Ms. Sigal on her appointment:

“Ellen’s engagement in both the policy and science of research make her an excellent choice. The Colorectal Cancer Coalition looks forward to working with the Board in advancing comparative effectiveness research for the benefit of patients.”

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The House is set to vote this afternoon on the Improving Access to Clinical Trials Act of 2010 (S. 1674) introduced by Senator Ron Wyden (D-OR).

The bill provides that the first $2,000 per year received by an individual for participation in a clinical trial shall not be counted as income for the purpose of calculating Social Security benefits.  This provision was included in the House-passed health care reform bill last November, but was not included in the final bill the President signed into law in March.

The Senate already passed this bill on August 5.  House passage later today will clear the bill for review and signature by the President.

Health reform is back in the news this week.  Why?  Today marks the six-month anniversary of the President signing this landmark legislation into law and several of the most-talked about and popular provisions of the law take effect today.

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By Jay Angoff, Director of the Office of Consumer Information and Insurance Oversight

Jay Angoff (image courtesy of the U.S. Department of Health & Human Services)

If you or a loved one has lived with cancer – you probably know more about the American health insurance system than you ever wanted. While most Americans have health insurance, few really know much about how their insurance works until the worst possible moment, when they are sick and need potentially life-saving care.

During the health reform debate, President Obama talked about the devastation of watching his mother battle both ovarian cancer and her insurance company. Unfortunately, such stories are all too common.

Thanks to the Affordable Care Act, fewer cancer patients are going to have to fight that two-front war. And many of the new patient rights and protections that will help cancer patients are beginning to take effect NOW, starting September 23rd. Read the rest of this entry »

This afternoon the U.S. Circuit Court of Appeals for the District of Columbia lifted a temporary injunction barring the federal government from funding research involving human embryonic stem cell research. The Court said that the federal government could resume funding the research pending a full appeal of the case.

Carlea Bauman, President of the Colorectal Cancer Coaliton issued the following statement after the ruling,

“We applaud the Court of Appeals for its action. Embryonic stem cell research plays an important role in the scientific battle against many diseases – and federal funding is vital to this type of research. We urge Congress to act quickly so that not another day is wasted.”

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