Author Archives: Danielle Burgess

BookClub

Summer Book Club – My Cancer Year

Need a good summer read? Join Fight Colorectal Cancer this summer for a LIVE ONLINE BOOK CLUB. It works just like any other book club, except instead of meeting as a small group, we’ll log online together to discuss the book. Plus, at the end of the summer, you’ll get the chance to see the author through a live-stream event! Join us this summer & connect with others in the fight! ABOUT THE BOOK My Cancer Year by Curtis Pesmen After too many days of chemo/poison pumping thru my veins, my body sends its 1st signal of being pi*#ed off at the assault… (pg 15) Once you’ve been hit by

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Fight Colorectal Cancer Applauds Sen. Brown for Introduction of “Removing Barriers to Colorectal Cancer Screening” Bill

FOR IMMEDIATE RELEASE Alexandria, Va. – May 12, 2014 – Fight Colorectal Cancer applauds Sen. Sherrod Brown (D-OH) for introducing a Senate bill seeking to remove a barrier preventing seniors from being screening for colorectal cancer. “Removing Barriers to Colorectal Screening Act” –a bill similar to the House legislation introduced by Rep. Charlie Dent (R-PA) in 2013. Both bills seek to eliminate the copay charged to those on Medicare when a polyp is found during their screening colonoscopy.   “Thanks to Sen. Brown, we now have an important piece of legislation in the Senate that can remove one of the major barriers to screening among a population that needs screened

AdvocacyUpdate

Advocacy Update – May 2014

Advocates, It’s hard to believe that we’re already five months into 2014! As we gear up for summer, things in advocacy are heating up.  In this update, you’ll find out what Fight CRC has been up to on the Hill and what your fellow advocates have been doing at home. For real time updates, be sure to join the advocates at Fight CRC Facebook group! Meet the New Grassroots Action Committee (GAC) This month, we said “see you later!” to a few of our GAC members who reached the end of their terms (read the blog post here). Although we hate to see them retire, we are so excited to have

Fight Colorectal Cancer Hires Partnership Manager

FOR IMMEDIATE RELEASE ALEXANDRIA, Va. (May 1, 2014) – Fight Colorectal Cancer is excited to announce the addition of Michell Baker to its team. Baker, a long-time advocate and volunteer of the organization, will manage the organization’s partnerships and provide direction and leadership for the nonprofit’s development and fundraising goals. “It’s exciting to see the organization grow,” said Anjee Davis, president of Fight Colorectal Cancer. “Michell is the perfect person for this job, she has passion and experience that will strengthen our partnerships across the country and take our colorectal cancer awareness programs into local communities.” Prior to joining Fight Colorectal Cancer, Baker served as the Executive Director of the

April 2014 Webinar: Alphabet Soup – Making Sense out of KRAS, BRAF and Tumor Tests

Have you ever heard any of these acronyms, and wondered what they stand for and how they can affect your treatment plan?  This webinar is designed to help patients better understand biomarkers, and how these biomarkers can affect the treatment options patients receive. We’ll discuss the basic understandings of a cancer cell lives, and how it dies.  As researchers are learning more and more about how to treat colorectal cancer, it is bringing the meaning of truly personalized medicine to the forefront. Join us to learn more, and how this research may affect your overall treatment plan. Presented by: Cathy Eng, M.D. Associate Professor, Department of Gastrointestinal (GI) Medical Oncology Dr.

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What’s Preventing Prevention? – A Recap from the Alliance for Health Reform/AARP Hill briefing

by Margaret Carvin, Fight Colorectal Cancer Policy Strategist Colorectal Cancer prevention and screening was discussed extensively at a senate lunch briefing last week by several panelists. CDC’s CRCCP Program Explained Judy Monroe, from Centers for Disease Control, discussed the Colorectal Cancer Control Program. She explained that this program covers 25 states and 4 Indian tribes. Two-thirds of the money of this program goes to “evidence-based screening” which includes outreach through media, provider reminders, etc. The other third of the money is designated for outreach to underserved populations. She discussed the great successes that have occurred from appropriate screenings and the goal to reach 80 percent of those eligible for screening colonoscopies by 2018. AARP Endorses H.R. 1070!

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2014 Award Winners

Each March at Call-on Congress, Fight Colorectal Cancer recognizes individuals who exemplify what our organization is all about. These people are not only advocates – they’re champions. Each of them offers their experience and passion to further the cause. This year’s 2014 Award Winners set the bar high. Advocate of the Year – Gordon Cole A survivor of stage IV colorectal cancer since 2003, Gordon Cole is an inspiration. As a hands-on patient, he’s actively monitored his own treatment (which consists of multiple surgeries, radiation, chemotherapy and several clinical trials.) As an advocate, he’s pushed for better policy and research funding. His constant voice has helped us raise colorectal cancer

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Cancer – Don’t Think Too Hard About It

by Danielle Burgess, two-time colorectal cancer survivor and Fight CRC’s Communications Director I recently received surprising advice from a counselor. I explained that losing friends to colorectal cancer doesn’t only sadden me – it scares me. Especially as someone with Lynch Syndrome. I can go from mourning the sudden loss of a friend, to feeling a strange pain in my side, to worrying that the pain was more than just gas, to assuming that if it hasn’t already – the cancer will come back, to sorting out how I’m going to tell my family that I’ve been diagnosed again… all in about two minutes. I think this is pretty common among

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