Author Archives: Danielle Burgess

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Portland One Million Strong Highlights

Portland One Million Strong Highlights

The day kicked off with flashing lights from a police car leading a parade procession, a snare drum cadence setting the pace. Cheers from a crowd of people dressed in blue and holding rally signs marched through downtown Portland. Roaring engines of light blue concrete and dump trucks followed the marchers until the final destination appeared – Pioneer Courthouse Square. As the parade broke up, colorectal cancer advocates flooded into an open outdoor area, “Portland’s Living Room,” where tables with information about colorectal cancer, games like “Pop the Polyp,” massage chairs and food trucks lined the perimeter. DJ O.G. One played beats from the stage as the whole area focused

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7th Lisa Fund Grant Awarded to Dr. Ho-Chou Tu

Fight Colorectal Cancer is excited to announce that Dr. Ho-Chou Tu received our 7th Lisa Fund Fellowship Grant – a $50,000 award given to a late-stage colorectal cancer researcher. This award is distributed through the Lisa Fund in partnership with American Association of Cancer Research (AACR.) Dr. Tu is a research fellow at the Children’s Hospital in Boston. She plans to use the award to determine the relationship between the Lin28A/B gene and colon cancer progression and prognosis. She hopes that her research will lead to predictive biomarkers for prognosis of colon cancer and a potential therapeutic target aimed to reduce colon cancer progression. Dr. Tu, a native of Taiwan,

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Future Planning for the Cancer Survivor

by Josh Wimberly, Ph.D., LGSW, MSW and rectal cancer survivor Hearing that you have cancer is life changing. There is absolutely no doubt. There exists a struggle to navigate this new piece of identity with which you have been anointed. Elephants Fighting to be Unnoticed in the Room Some of us hide the anxiety better than others brought by all the new hats we have to wear. Even though there are many elephants fighting to be unnoticed in the room, the largest is probably mortality itself. Whether we become the projection of life’s limits to our friends and family, or we are working through our own epiphanies about our vulnerability and

Blue Star States Campaign Turns Country “Blue” For Colon Cancer

This year, we teamed up with our friends at Colon Cancer Alliance to turn all 50 states blue and recognize March as National Colorectal Cancer Awareness Month. Volunteers across the nation took on the challenge and successfully received proclamations from 46 of the 50 states plus two state-issued letters, declaring the nation nearly all blue. President Obama even proclaimed March as National Colorectal Cancer Awareness Month to kick off March! It’s been an incredible month! We don’t want this momentum to end. Volunteers across the nation are making strides and we want to continue the movement by keeping colon cancer awareness to the forefront. What does this mean? We need your voice and we need

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What Doesn’t Kill You – A Story From Call-on Congress

by Bunny Terry They say (the pundits, singers and entertainers) that what doesn’t kill you makes you stronger. I’m pretty sure they were referring to cancer and its survivors. Songs with that phrase have been used as background music for several videos of cancer patients getting stronger in the face of this ever-present and devastating disease. The phrase definitely hits home for me. My Story I was diagnosed with stage IV colon cancer in November 2012. After my diagnosis, I contacted every person I knew who believed in prayer. I asked for everyone’s best thoughts. I did everything my oncologist recommended and then when he suggested a visit to MD Anderson

Clarification: Panel Approves Cologuard (not the FDA)

Fight Colorectal Cancer submitted public comments to the FDA last week regarding new colorectal cancer screening tests, including Cologuard by Exact Sciences and Epi proColon by epigenomics. (Read comments here.) Cologuard Update As a result of the advisory committee meeting, an FDA panel voted 10-0 to recommend that the FDA approve Cologuard. Cologuard is a stool-based screening test that looks for DNA in a patient’s stool that may detect genetic changes associated with cancer cells in the colon or rectum. A positive result from this test would lead patients to diagnostic colonoscopy. In this case, as we commented on new screening technologies we kept the following considerations in mind: 1)

Comments on New DNA & Stool-Based Screening Tests to FDA

This week Fight Colorectal Cancer is providing comments to the FDA as they consider two new screening technologies for colorectal cancer. Below are our opinions and recommendations presented to the Molecular and Clinical Genetics Panel as part of the Medical Devices Advisory Committee. Background: This week, the Food & Drug Administration (FDA) is hosting an advisory committee meeting with many stakeholders that have an interest in two new potential screening technologies, Epi proColon (by Epigenomics) and Cologuard (by Exact Sciences). Kim Ryan, our Director of Patient Information Services and advocate Marcia Mullins are attending to provide comments as the FDA considers these two new screening technologies.   About Epi proColon & Cologuard

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