Four Ambassadors

OMS CONTRIBUTION:

Advocate Elaine Newcomb from Wyoming is raising awareness of colorectal cancer to make sure the necessary information is available to those who hear the words “you have colorectal cancer.”

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In 2009 after a gall bladder attack and a visit to the emergency room, what was supposed to be a simple confirmation of a gall bladder issue turned out to be much more. Elaine was diagnosed with colon cancer that had metastasized to her liver.

After two surgeries and ten days of anxiety, I was scheduled with a visiting oncologist from a prestigious Cancer Center in Salt Lake City, UT. After a brief exam, he told me I was terminal with no treatment options and had some months to live. I was not a candidate for a liver resection and I should go home and enjoy whatever life I had left. These are exact words. He was very matter of fact and I was gobsmacked!

View Elaine’s Awareness Activities:

BONUS: Watch Elaine’s Story!

Elaine is one of our featured models for our 2016 campaign! Watch her inspiring story that will be shared on social media, in Times Square and at the OMS Showcase on April 1 in Nashville!

About Elaine’s Awareness Activities:

After hearing from her first doctor that no treatment options were available to her, Elaine sought a second opinion. After finding out there was treatment available and that she was a candidate for a liver resection, she decided to advocate so others don’t have to face the same trauma she did.

Now six years cancer-free, Elaine is working hard in her community, her state and nationwide to make her voice heard.

What was the one thing I needed most during those 10 awful days after diagnosis? INFORMATION – solid, easy to understand information about treatment options, how to cope with chemotherapy, radiation, depression, anxiety, family – the list goes on. And I needed someone to talk to who understood my situation. I started to read and sort out as best I could information I could share with patients. This is when I found Fight Colorectal Cancer.

Elaine attended her first Call-on Congress in 2011 and walked away with a community of fighters she could make her voice heard with. Once home from her first Call-on Congress, she began sharing information with other patients, doctors and newspapers via interviews on the radio, health fairs and social media. She soon became known as the “colon cancer lady” in her community.

Elaine found a love for the research behind colorectal cancer and is a member of the Research Advocacy Training  and Support (RATS) program at Fight CRC. Posting a #StrongArmSelfie on social media, joining Fight CRC at awareness events and hosting her own events gives Elaine the power to make her voice heard and add to the One Million Strong Collection.

Add to the Collection:

Elaine’s story is just one piece of the One Million Strong Collection that’s highlighting the millions of reasons we’re in the fight against colorectal cancer. Be creative and show us why you’re in the fight! To learn how to contribute, get inspired and view the Collection, visit OMScollection.org.

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8 comments on “Featuring: Elaine Newcomb Raising Her Voice”

  1. 1
    Mary on February 3, 2016

    What an amazing story! So glad you shared.

  2. 2
    Darla Fike on February 4, 2016

    I was told the same thing over the phone with no compassion, on feeling. Can not believe they do that to people. I am going to start chemo the first of March and then a liver resection after 3 months. Praying for you, please pray for me. You have given me hope.

    1. 3
      S Rubin on February 8, 2016

      So glad you girls refused NO as an answer. Congratulations & only good thoughts.

  3. 4
    Celeste on September 7, 2016

    Elaine , I live in south america and I have just been diagnosed with stage IV rectal cancer with metastasis to the liver . I’m terrified because I never felt anything . My doctor said that my treatment will begin with a chemotherapy followed by radiotherapy after surgery in the liver , then the rectum and finally more chemotherapy. And your treatment , how was it? Will I endure this battle ?

  4. 5
    Gail Shugart on January 25, 2017

    I also am a stage IV colon cancer survivor of 12 years. I was first treatedwith ” conventional” chemo for 8 months at a well – known cancer treatment center. As my cancer was metastatic, it returned in my right lung. It was removed twice and I was told to repeat the first type of treatment. That is when I began to search for alternatives in metastatic colon cancer treatment. I am alive today,, but am anxious to share my story with others!!

  5. 6
    Kelly Fawn on January 29, 2017

    Hi,, I thought stage 4 is uncurable,, Are you NED or just on management?
    Im so glad you are 6yrs+. I’ve been “suppose-id” NED for 3 month’s but am on Cetuximab for management. Its really hard for me to believe I went froma possible 2-5 expiration date to your NED,,have a great life…
    Actually ran into your story as I’ve been trying to find data on life expectancy of Cetuximab with S4-CRC..
    Thank you for your sharing.

  6. 7
    Erika on January 30, 2017

    I watched my mom die from colorectal cancer. It was brutal she was in remission for ten years and it came back in her pelvis a pos doctor told her it was scar tissue from the previous surgery. By the time we went to mayo 6 months later it was in her lung. She survived 2.5 years with palliative care. I hate this disease with everything in side of me! I watch my beautiful mother become a shell of the person she was. I watched her hair fall out I watch her weight go from 211 to 87 pounds in three months. I watched tumors take a visual vaginal route that I cleaned with my hands I watched it invade her spine where she couldn’t walk, I watched her stop eating and I gave her fluids via iv, I watch avastin cause a colovestula fistula and she would pee poop so they gave her another ileostomy bag and bilateral nephrostomy tube’s. I watched my mother cry when I would have to change those bags! And I watched my mother take her last breath because the lung tumor invaded both of her lungs to the point she couldn’t breathe anymore. But worst of all I watched my fearless mother and best friend live in fear from the moment they diagnosed her with cancer. There wasn’t a day in 12 years from that first diagnosis that cancer did exactly what it does uninvitedly invade and consume and ruin a family!

  7. 8
    Gail Shugart on March 16, 2017

    Kelly, I was taking the Xeloda and Celebrex combination as prescribed by Dr Ed Lin at Seattle Cancer Care, Fred Hutchinson Cancer Center in Seattle. I had been treated by this doctor at MD Anderson in Houston, Texas, at the beginning of my cancer journey. He left and went to Fred Hutch in the summer of 2006. I did not know where he was, but looked him up after having 2 lung resections. I did a lot of research online before trying another treatment. I felt I had nothing to loose. I also thought that it had been 5 years since had started treatment, and expected to find something new in the oncology world in colon cancer treatment. That is something that drives me: expecting more, and information. I am no longer taking the Xeloda-Celebrex combination ( which has been termed ADAPT in its stage II trial). I have been cancer free since the fall of 2010. I have been tested with CEA’s since then and am below a “1”. My count was not high to begin with. So I have my life back!! I would be glad to answer any other questions you have, to the best of my ability.

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