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What Doesn’t Kill You – A Story From Call-on Congress

What Doesn’t Kill You – A Story From Call-on Congress

by Bunny Terry They say (the pundits, singers and entertainers) that what doesn’t kill you makes you stronger. I’m pretty sure they were referring to cancer and its survivors. Songs with that phrase have been used as background music for several videos of cancer patients getting stronger in the face of this ever-present and devastating disease. The phrase definitely hits home for me. My Story I was diagnosed with stage IV colon cancer in November 2012. After my diagnosis, I contacted every person I knew who believed in prayer. I asked for everyone’s best thoughts. I did everything my oncologist recommended and then when he suggested a visit to MD Anderson

Clarification: Panel Approves Cologuard (not the FDA)

Fight Colorectal Cancer submitted public comments to the FDA last week regarding new colorectal cancer screening tests, including Cologuard by Exact Sciences and Epi proColon by epigenomics. (Read comments here.) Cologuard Update As a result of the advisory committee meeting, an FDA panel voted 10-0 to recommend that the FDA approve Cologuard. Cologuard is a stool-based screening test that looks for DNA in a patient’s stool that may detect genetic changes associated with cancer cells in the colon or rectum. A positive result from this test would lead patients to diagnostic colonoscopy. In this case, as we commented on new screening technologies we kept the following considerations in mind: 1)

Comments on New DNA & Stool-Based Screening Tests to FDA

This week Fight Colorectal Cancer is providing comments to the FDA as they consider two new screening technologies for colorectal cancer. Below are our opinions and recommendations presented to the Molecular and Clinical Genetics Panel as part of the Medical Devices Advisory Committee. Background: This week, the Food & Drug Administration (FDA) is hosting an advisory committee meeting with many stakeholders that have an interest in two new potential screening technologies, Epi proColon (by Epigenomics) and Cologuard (by Exact Sciences). Kim Ryan, our Director of Patient Information Services and advocate Marcia Mullins are attending to provide comments as the FDA considers these two new screening technologies.   About Epi proColon & Cologuard

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Remembering Tonya

I remember the first time I saw Tonya. I immediately knew I liked her. Reading over her application to be a Colondar model, I had no doubt she embodied a survivor everyone would look up to. Pictures didn’t do her justice. Yes, her beauty hopped off the page. But it was her strong spirit and insistence on being positive that could only come across in person. It was at her 2014 Colondar photo shoot that I didn’t only realize she made an incredible model – I realized she was also an ideal advocate. “We have got to DO SOMETHING about this!” she kept saying. “I tell people that you become

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Happy: Recap of Day 3 of 2014 Call-on Congress

It may sound strange that the #1 song on Billboard’s Top 100 this week, “Happy” by Pharrell Williams, became the go-to song on our playlist this week at Call-on Congress. But there’s no other way to put it. Crazy, I know. Last night a room full of people who’ve faced the “c” word, some of us multiple times, danced in a conga line to the song – a repeat of what happened a few nights prior. A crowd made up of people who represent loved ones that passed away or caregivers of those physically unable to make the trip celebrated in unison. The reasons to be unhappy were many, yet

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Simply Amazing: Recap of Day 2 of 2014 Call-on Congress

It’s difficult to encapsulate today through a blog post and a few photos we snapped. Today will definitely go down in the Fight Colorectal Cancer history books as one of the greatest days we experienced as an organization. Not only did we participate in events that escalated our cause and confirmed that colorectal cancer is a national priority. We got to share in the moments amongst all of our advocates attending Call-on Congress. Here are a few highlights of the day: ASCO building – we trotted through the snow this morning and entered a jaw-dropping, beautiful meeting space at the American Society of Clinical Oncology (ASCO) building. Advocates heard from

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Excited Advocates: Recap of Day 1 of 2014 Call-on Congress

It might sound odd to explain the mood of getting over 80 people from all across the country together to talk about colorectal cancer as exciting – but that’s exactly the word that encapsulates the day. At the end of Day 1, there’s a sense among all of us that big things lie ahead over the next 48 hours. And that’s not just because tomorrow some of our team will meet at the White House and speak at a National Press Conference… or that Rep. Donald Payne, Jr. will join us and address our advocates personally. Although those items on tomorrow’s docket are extremely exciting, the overwhelming sense of excitement comes

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5 Ways To Be an Advocate From Home This Week

So a trip to DC wasn’t in the cards for you? No worries – hundreds of colorectal cancer advocates are at home right now. Good news – you can still be an advocate this week! Social media has transformed the way our elected officials hear from us. By doing your part from home, you amplify the message of those meeting face-to-face with members of Congress and their staff this coming Tuesday. Here are 5 things YOU can do to be involved this week: 1. Rev Up Those Social Media Accounts We’re asking you to lend your social media accounts to the cause. That means we need you to get on Facebook,

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Reaching Millions through One Million Strong

Summary:  The New York City kickoff of One Million Strong reached millions as people participated in the event in Grand Central Terminal, logged online and lent their media outlets to ‘march’ for the cause on March 3, 2014. Success in The City: Our event did not disappoint. So many survivors, caregivers and advocates braved the cold and traveled amidst winter weather advisories to join us! THANK YOU to all of you who came out to march with us! The day was absolutely amazing. Here were a few of our high-points: > Grand Central Terminal hosted our event as hundreds came and participated in yoga and zumba, walked-through the Colon Cancer

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Never too Late To Join One Million Strong – Danielle’s Thoughts

I tend to run fashionably late. Meetings, appointments, even conference calls – I struggle to arrive or call-in right on time. This floods into emotional things too – it takes awhile for reality to “sink in” for me. For me to process a moving and emotional experience, and understand what it meant for my life. So – it’s fitting that almost two weeks after our NYC kickoff of One Million Strong – I’m just now able to put to words what the experience meant to me. Or at least try to. I’m still pinching myself that I get to work with the amazing staff and advocates at Fight Colorectal Cancer and

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