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Advocacy Update – June 2014

Advocacy Update – June 2014

Advocates, The past month has shown that your efforts make a difference.  We are making progress in colorectal cancer advocacy! In addition to Sen. Brown (D-OH) introducing the Senate component of H.R. 1070 (S. 2348), May was named National Cancer Research Month by a unanimous Senate resolution and appropriations were released. At home, we’ve had advocates visiting, calling and emailing their elected officials to remind them that we need their support! Read this month’s update to find out all of the details. ADVOCATE SPOTLIGHT: MARCI KING MARSH We first met Marci at Call-on Congress 2014, where her thirst for knowledge was apparent. She asked detailed questions, befriended many fellow advocates,


Meet the One Million Strong – Bridget V from Florida

Be a part of One Million Strong and tell us how colorectal cancer has impacted your life! Share your story now!  MEET BRIDGET  Bridget Veal, Survivor Lake Panasoffkee, FL BRIDGET’S STORY It all started with a pain on my right side – which they diagnosed as a fibroid tumor.  Six months later, the same pain on the left side – but too low for an ovary issue.  My CT scan showed a mass, about the size of a grapefruit, engulfing the ovary.  Now, yes I was tired a lot. I’d sleep four hours after coming home each night, but hey, I was coaching and it was the end of the school


Meet the One Million Strong: Jo-Ann C. from Ontario,Canada

Be a part of One Million Strong and tell us how colorectal cancer has impacted your life! Share your story now!  MEET JO-ANN Jo-Ann Cluney, Survivor Pickering, Ontario, Canada JO-ANN’S STORY I was diagnosed with Stage IIIB Colorectal Cancer in November of 2011.  I had a colon resection within two weeks of diagnoses and started chemo and radiation in January of 2012.  Not knowing anyone who had been through this, I was very scared of the unknown.  Thank goodness for sites like this to learn from others who have been there.  My chemo finished in July of 2012 and I have been in remission ever since.  I want people to know


Fight Colorectal Cancer Thanks Bipartisan Leaders for Requesting a Fix from the White House on a Medicare Error Impacting Colorectal Cancer Screening

FOR IMMEDIATE RELEASE Key congressional committee members send letter to White House pointing out contradictions in Medicare law, asking for the removal of a “counterproductive, inconsistent and unfair” policy involving cost-sharing for colonoscopy.  Alexandria, Va. – May 30, 2014 – Fight Colorectal Cancer is pleased to hear that President Obama received a letter today signed by several House and Senate members asking for a critical fix to Medicare law that could potentially save lives and prevent colorectal cancer. The bipartisan letter signed by several members of key congressional committees requested that the White House step in and remove the cost-sharing component to colonoscopy screening impacting Medicare patients – the issue addressed


You Can Be Like Portland – Host a March!

On April 12, advocates, volunteers, dancers, food cart vendors, tourists, acrobats, and other Portlandians gathered in Pioneer Courthouse Square. Together, we celebrated the one million colorectal cancer survivors in the United States, commemorated those who lost their fight against the disease, and educated the public about colorectal cancer screening and prevention. It was a sight to be seen! When LaRisha, Marsha, and Michell Baker approached Fight CRC with the idea of partnering with their nonprofit organization, the Steve Baker Memorial Colorectal Cancer Alliance, to take One Million Strong to the West Coast, I can honestly say that we had no clue what we were getting ourselves into—in a good way!

Fight Colorectal Cancer Grows Health Promotion Program to Reach and Empower Patients

FOR IMMEDIATE RELEASE ALEXANDRIA, Va. (May 30, 2014) – Fight Colorectal Cancer is taking steps to ensure that patients and their families can get the resources they need to fight colorectal cancer. A new Health Promotion program will refine the organization’s patient education services while adding new components to better reach and equip patients. “We know that patients are looking for a place to go, or a starting point, once they are diagnosed and we’re focusing our programs to ensure that we provide relevant, reliable and practical resources,” said Anjee Davis, president of Fight Colorectal Cancer. New Health Promotion Program Over the last five years the patient education program at


Meet the One Million Strong – Robert D from Red Lake, Minnesota

Be a part of One Million Strong and tell us how colorectal cancer has impacted your life! Share your story now!  MEET ROBERT Robert DesJarlait, Survivor Red Lake, MN ROBERT’S STORY In April 2013,   I had an endoscopy showing a gastric ulcer that was repaired. At the suggestion of my doctor, I had a follow-up colonoscopy which revealed a large cecal mass. The adenoma (benign tumor) measured 10 cm; however, within the adenoma, there was a 2.5 cm adenocarcinoma (cancerous tumor). It was rated as a T-2 tumor, Stage I cancer. Approximately one-foot of my colon was removed during resection.My oncologist said I was very fortunate to have the colonoscopy when



CORPORATE GIVING by board member Dana Rye Corporate giving might sound like something out of reach, especially at a large company. But as I learned, many companies have huge amounts of money set aside for organizations that are important to their employees. Take for example my old company – an investment bank called Credit Suisse. I started with a fundraising run a few years ago. Credit Suisse agreed to donate $3,000 just for convincing ten coworkers to run or walk the race with me. They also have funds available for volunteer work, board membership and holiday giving. After years of fundraising runs, Credit Suisse agreed to place Fight Colorectal Cancer on


Meet the One Million Strong – Wanda C from Washington

Be a part of One Million Strong and tell us how colorectal cancer has impacted your life! Share your story now!  MEET WANDA Wanda Charles, Survivor Vancouver, WA WANDA’S STORY I had been having symptoms for 7-8 years, but we had no insurance. It finally got so bad I went to the women’s clinic. The doctor took blood and called the next day. He said something was wrong and that there was some internal bleeding. He set up an appointment for me to see a gastroenterologist. I was scheduled for a colonoscopy and heard “you have cancer” as soon as I got back into the room….in front of my husband and


Meet the One Million Strong – Kimberly B from Florida

Be a part of One Million Strong and tell us how colorectal cancer has impacted your life! Share your story now!  MEET KIMBERLY Kimberly Bishop, Survivor Osteen, FL KIMBERLY’S STORY I was diagnosed with stage III rectal cancer in February 2007, at age 34.  I was young, fit, and perfectly healthy in every other way.  I share the same story that is typical of so many young CRC survivors; I was told I had hemorrhoids and IBS and was denied screening for over three years.  My doctor finally decided I need to be scoped and my first colonoscopy revealed a 13cm. sessile villous adenoma at my recto-sigmoid juncture. After colon resection