Policy & Advocacy News articles

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CREATING A VISION – A CURRENT OF HOPE

CREATING A VISION – A CURRENT OF HOPE

“Few will have the greatness to bend history itself, but each of us can work to change a small portion of events. It is from numberless diverse acts of courage and belief that human history is shaped. Each time a man stands up for an ideal, or acts to improve the lot of others, or strikes out against injustice, he sends forth a tiny ripple of hope, and crossing each other from a million different centers of energy and daring those ripples build a current which can sweep down the mightiest walls of oppression and resistance.” ― Robert F. Kennedy CREATING RIPPLES OF HOPE by Anjee Davis,  President I think about our mission

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Advocacy in July – The March Momentum Continues

by Emily White, Advocacy Manager Our team spent three days last week in the hub of Washington, D.C. and stirred things up a bit!  We were joined by four of our amazing grassroots advocates: Jovannie Lorenzo (NJ), Patti Hollenback (PA), Bunny Terry (NM) and Debra Merritt (LA). Our schedule was so jam-packed with meetings that our staff had to split up in order to be so many places at one time!  Although we spent much of the trip apart, we all came together for one very important meeting on July 16—the 80% screened by 2018 stakeholder meeting that we co-hosted with the American Cancer Society Cancer Action Network (ACS CAN).

July 16 Stakeholder Meeting and Lobby Day in D.C.

HELP US REACH THE NATIONAL SCREENING GOAL OF 80% OF AMERICANS 50 & OLDER SCREENED BY 2018! On July 16, the American Cancer Society’s Cancer Action Network and Fight Colorectal Cancer are co-hosting a stakeholder meeting and lobby day to push forward with this goal. This is the first opportunity for key colorectal cancer organizations and supporters to join together and bring their staff, volunteers and members to Washington, D.C. to meet with Congress to advocate for federal policies that will help us achieve our goal of 80% by 2018. Joined by Congressman Donald Payne, Jr. and other lawmakers dedicated to the mission, a morning meeting will focus on discussing the

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Delays in VA Affect Colon and Rectal Cancer Patients

by Emily White, Advocacy Manager THE ISSUE - THE VA SCANDAL In May 2014, watchdog media released information regarding extreme negligence within the Department of Veterans Affairs (VA). The scandal broke national headlines after information regarding secret lists and delayed care within Arizona’s VA system was released. An article published by NBC on May 9 stated, “Hospital whistleblowers have said that administrators at the Phoenix facility, trying to improve their performance record, ordered that thousands of appointment requests be diverted to a secret, unofficial list of veterans awaiting appointments. If the patients died, their names would simply disappear, the whistleblower said.”[1] Read the NBC article DELAYS IN VA GO FAR BEYOND ARIZONA

AdvocacyUpdate

Advocacy Update – July 2014

Advocates, we hope that your summer is more relaxing than ours has been so far! Between Sen. Brown’s introduction of the H.R. 1070 Senate component bill, S.2348, and meetings both on and off the Hill, we’ve been keeping busy! Read this month’s update to find out the latest in advocacy at Fight Colorectal Cancer and join the Advocates at Fight Colorectal Cancer Facebook group to connect with others. ADVOCATE SPOTLIGHT: KELLY KUSTER Kelly Kuster of Milwaukee, Wis. is best known in the colorectal cancer community as the June 2013 Colondar Model, but her involvement doesn’t stop there! On June 25, Kelly represented Fight Colorectal Cancer as a patient advocate and stage

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Honoring My Father Through Advocacy

by Michell Baker, partnership manager for Fight Colorectal Cancer At the time of my father’s diagnosis, I was living in beautiful sunny San Diego, CA without a care in the world. Life was good, so I thought……… In July of 2007, we found out our strong, sensitive, humble father had colon cancer. Just hearing the word cancer was a huge blow to the stomach, and then days later finding out that it was stage IV cancer was a complete body blow. In August, I flew home to Portland, OR for my daddy’s surgery. It removed a portion of his colon and some lesions on his liver.  The waiting room was

AdvocacyUpdate

Advocacy Update – June 2014

Advocates, The past month has shown that your efforts make a difference.  We are making progress in colorectal cancer advocacy! In addition to Sen. Brown (D-OH) introducing the Senate component of H.R. 1070 (S. 2348), May was named National Cancer Research Month by a unanimous Senate resolution and appropriations were released. At home, we’ve had advocates visiting, calling and emailing their elected officials to remind them that we need their support! Read this month’s update to find out all of the details. ADVOCATE SPOTLIGHT: MARCI KING MARSH We first met Marci at Call-on Congress 2014, where her thirst for knowledge was apparent. She asked detailed questions, befriended many fellow advocates,

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Fight Colorectal Cancer Thanks Bipartisan Leaders for Requesting a Fix from the White House on a Medicare Error Impacting Colorectal Cancer Screening

FOR IMMEDIATE RELEASE Key congressional committee members send letter to White House pointing out contradictions in Medicare law, asking for the removal of a “counterproductive, inconsistent and unfair” policy involving cost-sharing for colonoscopy.  Alexandria, Va. – May 30, 2014 – Fight Colorectal Cancer is pleased to hear that President Obama received a letter today signed by several House and Senate members asking for a critical fix to Medicare law that could potentially save lives and prevent colorectal cancer. The bipartisan letter signed by several members of key congressional committees requested that the White House step in and remove the cost-sharing component to colonoscopy screening impacting Medicare patients – the issue addressed

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Fight Colorectal Cancer Applauds Sen. Brown for Introduction of “Removing Barriers to Colorectal Cancer Screening” Bill

FOR IMMEDIATE RELEASE Alexandria, Va. – May 12, 2014 – Fight Colorectal Cancer applauds Sen. Sherrod Brown (D-OH) for introducing a Senate bill seeking to remove a barrier preventing seniors from being screening for colorectal cancer. “Removing Barriers to Colorectal Screening Act” –a bill similar to the House legislation introduced by Rep. Charlie Dent (R-PA) in 2013. Both bills seek to eliminate the copay charged to those on Medicare when a polyp is found during their screening colonoscopy.   “Thanks to Sen. Brown, we now have an important piece of legislation in the Senate that can remove one of the major barriers to screening among a population that needs screened

AdvocacyUpdate

Advocacy Update – May 2014

Advocates, It’s hard to believe that we’re already five months into 2014! As we gear up for summer, things in advocacy are heating up.  In this update, you’ll find out what Fight CRC has been up to on the Hill and what your fellow advocates have been doing at home. For real time updates, be sure to join the advocates at Fight CRC Facebook group! Meet the New Grassroots Action Committee (GAC) This month, we said “see you later!” to a few of our GAC members who reached the end of their terms (read the blog post here). Although we hate to see them retire, we are so excited to have

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