Policy & Advocacy News articles

AdvocacyUpdate

Advocacy Update – July 2014

Advocacy Update – July 2014

Advocates, we hope that your summer is more relaxing than ours has been so far! Between Sen. Brown’s introduction of the H.R. 1070 Senate component bill, S.2348, and meetings both on and off the Hill, we’ve been keeping busy! Read this month’s update to find out the latest in advocacy at Fight Colorectal Cancer and join the Advocates at Fight Colorectal Cancer Facebook group to connect with others. ADVOCATE SPOTLIGHT: KELLY KUSTER Kelly Kuster of Milwaukee, Wis. is best known in the colorectal cancer community as the June 2013 Colondar Model, but her involvement doesn’t stop there! On June 25, Kelly represented Fight Colorectal Cancer as a patient advocate and stage

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Honoring My Father Through Advocacy

by Michell Baker, partnership manager for Fight Colorectal Cancer At the time of my father’s diagnosis, I was living in beautiful sunny San Diego, CA without a care in the world. Life was good, so I thought……… In July of 2007, we found out our strong, sensitive, humble father had colon cancer. Just hearing the word cancer was a huge blow to the stomach, and then days later finding out that it was stage IV cancer was a complete body blow. In August, I flew home to Portland, OR for my daddy’s surgery. It removed a portion of his colon and some lesions on his liver.  The waiting room was

AdvocacyUpdate

Advocacy Update – June 2014

Advocates, The past month has shown that your efforts make a difference.  We are making progress in colorectal cancer advocacy! In addition to Sen. Brown (D-OH) introducing the Senate component of H.R. 1070 (S. 2348), May was named National Cancer Research Month by a unanimous Senate resolution and appropriations were released. At home, we’ve had advocates visiting, calling and emailing their elected officials to remind them that we need their support! Read this month’s update to find out all of the details. ADVOCATE SPOTLIGHT: MARCI KING MARSH We first met Marci at Call-on Congress 2014, where her thirst for knowledge was apparent. She asked detailed questions, befriended many fellow advocates,

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Fight Colorectal Cancer Thanks Bipartisan Leaders for Requesting a Fix from the White House on a Medicare Error Impacting Colorectal Cancer Screening

FOR IMMEDIATE RELEASE Key congressional committee members send letter to White House pointing out contradictions in Medicare law, asking for the removal of a “counterproductive, inconsistent and unfair” policy involving cost-sharing for colonoscopy.  Alexandria, Va. – May 30, 2014 – Fight Colorectal Cancer is pleased to hear that President Obama received a letter today signed by several House and Senate members asking for a critical fix to Medicare law that could potentially save lives and prevent colorectal cancer. The bipartisan letter signed by several members of key congressional committees requested that the White House step in and remove the cost-sharing component to colonoscopy screening impacting Medicare patients – the issue addressed

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Fight Colorectal Cancer Applauds Sen. Brown for Introduction of “Removing Barriers to Colorectal Cancer Screening” Bill

FOR IMMEDIATE RELEASE Alexandria, Va. – May 12, 2014 – Fight Colorectal Cancer applauds Sen. Sherrod Brown (D-OH) for introducing a Senate bill seeking to remove a barrier preventing seniors from being screening for colorectal cancer. “Removing Barriers to Colorectal Screening Act” –a bill similar to the House legislation introduced by Rep. Charlie Dent (R-PA) in 2013. Both bills seek to eliminate the copay charged to those on Medicare when a polyp is found during their screening colonoscopy.   “Thanks to Sen. Brown, we now have an important piece of legislation in the Senate that can remove one of the major barriers to screening among a population that needs screened

AdvocacyUpdate

Advocacy Update – May 2014

Advocates, It’s hard to believe that we’re already five months into 2014! As we gear up for summer, things in advocacy are heating up.  In this update, you’ll find out what Fight CRC has been up to on the Hill and what your fellow advocates have been doing at home. For real time updates, be sure to join the advocates at Fight CRC Facebook group! Meet the New Grassroots Action Committee (GAC) This month, we said “see you later!” to a few of our GAC members who reached the end of their terms (read the blog post here). Although we hate to see them retire, we are so excited to have

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Emily’s Thank You to our Grassroots Action Committee

by Emily White, Advocacy Manager At Fight Colorectal Cancer, maybe our mantra should be “it takes a village to grow a movement.” We couldn’t do what we do without the support of committed volunteers and advocates across the country. At the core of Fight Colorectal Cancer is our Grassroots Action Committee (GAC). Members of the GAC are a vital part of the planning and execution of every event and program at Fight CRC. In many cases, we refer to them as our “pulse check.” They represent advocates from across the country, they remind us of our core values and their opinions are highly valued. This special group of eight to

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What’s Preventing Prevention? – A Recap from the Alliance for Health Reform/AARP Hill briefing

by Margaret Carvin, Fight Colorectal Cancer Policy Strategist Colorectal Cancer prevention and screening was discussed extensively at a senate lunch briefing last week by several panelists. CDC’s CRCCP Program Explained Judy Monroe, from Centers for Disease Control, discussed the Colorectal Cancer Control Program. She explained that this program covers 25 states and 4 Indian tribes. Two-thirds of the money of this program goes to “evidence-based screening” which includes outreach through media, provider reminders, etc. The other third of the money is designated for outreach to underserved populations. She discussed the great successes that have occurred from appropriate screenings and the goal to reach 80 percent of those eligible for screening colonoscopies by 2018. AARP Endorses H.R. 1070!

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2014 Award Winners

Each March at Call-on Congress, Fight Colorectal Cancer recognizes individuals who exemplify what our organization is all about. These people are not only advocates – they’re champions. Each of them offers their experience and passion to further the cause. This year’s 2014 Award Winners set the bar high. Advocate of the Year – Gordon Cole A survivor of stage IV colorectal cancer since 2003, Gordon Cole is an inspiration. As a hands-on patient, he’s actively monitored his own treatment (which consists of multiple surgeries, radiation, chemotherapy and several clinical trials.) As an advocate, he’s pushed for better policy and research funding. His constant voice has helped us raise colorectal cancer

Blue Star States Campaign Turns Country “Blue” For Colon Cancer

This year, we teamed up with our friends at Colon Cancer Alliance to turn all 50 states blue and recognize March as National Colorectal Cancer Awareness Month. Volunteers across the nation took on the challenge and successfully received proclamations from 46 of the 50 states plus two state-issued letters, declaring the nation nearly all blue. President Obama even proclaimed March as National Colorectal Cancer Awareness Month to kick off March! It’s been an incredible month! We don’t want this momentum to end. Volunteers across the nation are making strides and we want to continue the movement by keeping colon cancer awareness to the forefront. What does this mean? We need your voice and we need

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