Policy & Advocacy News articles

ACA Mandates Insurance Coverage for Clinical Trials

By January 1, all insurers will be required to cover routine care for patients enrolled in clinical trials. (Typically any experimental care is provided at no cost to the patient.) “This should be seen as a step forward for the U.S. oncology community,” wrote Dr. Y-Ning Wong in the ASCO Daily News from the American Society of Clinical Oncology’s meeting in Chicago. “However, patients and providers must remain vigilant about the law’s implementation.” Currently there is a patchwork of state laws; as of January  2014, the Affordable Care Act (ACA) creates a federally required minimum that all private insurers must cover at least the usual care when patients enroll in a

What’s Happening on Capitol Hill? May 2013 Update

Dear Advocates, Your efforts are making an impact. Every time you exercise your right as a US citizen to communicate with Congress, you are changing the landscape for colorectal cancer patients. We applaud you for your passion and advocacy. Has Your Representative Cosponsored H.R. 1070? ACTION REQUESTED Rep. Charlie Dent (R-PA) introduced on March 15 the “Removing Barriers to Colorectal Cancer Screening Act,” (H.R. 1070).The bill would waive Medicare beneficiary coinsurance for colorectal cancer screening colonoscopy when a polyp is removed.  As of May 16, the bill had 28 cosponsors. To find out if your representative has cosponsored H.R. 1070 go to www.thomas.gov and search by bill number.  If your

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“You Don’t Own Me….” But do you own part of my genes?

The U.S. Supreme Court heard arguments Monday in a case that both sides consider absolutely vital to the future of medical research. The case: Can a company take out a patent on a human gene? Or, as the company Myriad Genetics told the Court, not actually a patent on a gene, but a patent on isolated sections of DNA molecules that they synthetically re-create in the lab to make a test for the gene. Patents were created 150 years ago in the Constitution as temporary protection of new inventions, thus giving economic incentive for inventors. But there is a clear rule that you cannot patent “a product of nature.” During oral

Statement from Carlea Bauman, President of Fight Colorectal Cancer, Regarding the President’s 2014 Budget

I am deeply disappointed that President Obama’s fiscal year (FY) 2014 budget would strip nearly $4 million from the Centers for Disease Control and Prevention’s (CDC) Colorectal Cancer Control Program. The CDC estimates that the loss of funding will mean at least five fewer programs (out of the current 29) working to prevent colorectal cancer. The president’s budget assumes that less federal funding is needed for direct screenings, such as colorectal, breast, and cervical screenings, because most health plans are required to cover these screenings without co-pays or deductibles, and because, starting in 2014, the Affordable Care Act ensures that no one can be denied health insurance because of a

Scientists and Advocates Rally for Medical Research

The annual scientific meeting of the American Association for Cancer Research took a little lunch break on Monday, April 8th in Washington, D.C., while the attendees streamed outside to join a crowd of several thousand gathered across the street for a loud street rally. “When [Congress] sees a grassroots movement rising up from doctors, from scientists, from advocates, and patients, you become impossible to ignore,” cancer survivor Rep. Rosa DeLauro (D-CT) told the cheering crowd. (Watch video of the speakers here.) Fight Colorectal Cancer was one of 200-plus organizations who gathered and supported the  Rally for Medical Research, aimed at the politicians who have made, and are making,  decisions about budget cuts. The

Research and Advocacy

Those who go into medical research often have science on the mind. Not politics. But researchers who joined us for the 2013 Call-on Congress showed how the two fields merge. Particularly when funding is involved. Fighting Colorectal Cancer at the Research and Policy Levels I love how Nancy Roach, Founder and Chair of the Board, explains the importance of advocacy AND research in the One Million Strong PSA, “I founded Fight Colorectal Cancer in 2006 because people who have been touched by colorectal cancer need a voice at the tables where decisions are being made that impact their survival.” – Nancy Roach Fighting colorectal cancer demands more than raising awareness

Heroes on the Hill

I’ve alluded to a few of the Congressmen who champion the fight against colorectal cancer in previous posts. But today, I wanted to share a few of their stories and tell why they get behind a cure with us. Congressman Donald Payne Jr. Emotions flooded the room as we sat with Donald Payne Jr. during an interview at the Call-on Congress. A little over one year ago, Donald’s father, Congressman Donald Payne Sr., passed away after a short battle with colorectal cancer at age 77. Explaining his father’s battle did not come easy; I know anyone who’s lost someone to this disease can relate. His father was diagnosed with colorectal

Fight Colorectal Cancer Honors Advocates for Service to the Cause

Each year at Call-on Congress, Fight Colorectal Cancer gives out three awards to advocates who go above and beyond to advance the cause of colorectal cancer patients. The 2013 award recipients are: The Andrew Giusti Memorial Award was posthumously awarded to the late Kate Murphy for her tireless activism on behalf of colorectal cancer patients and for focusing, like Andrew Giusti did, on pushing for great science that will translate to patient benefits as quickly as possible. Kate was a founding staff member of Fight Colorectal Cancer and our Director of Research Communications. She was the first patient advocate to ever sit on the National Comprehensive Cancer Network’s Colon/Rectal/Anal panel, which develops treatment

How To Roll As You Come Down From the Hill

Hey everyone! Hopefully I am not the only one who took two-hour naps for three days after the Call-on Congress. A busy agenda, invigorating meetings and conga line can wear a girl out! Now that we’re rested up it’s time to get back to work – locally! Follow-up From the Hill I wanted to give you a refresher from the Engaging Your Local Networks presentation by Devin James, Michael Sola and Anjee Davis. Carlea Bauman also gave great advice during her training sessions on how to follow-up and continue to make waves in Congress now that you’re home. Use Social Media Remember those Twitter accounts you started so you too

Cancer Survivors: Population Explosion Coming

  You think we’ve made a lot of noise during this Colorectal Cancer Awareness month? We’re only going to get louder. On Monday morning, Fight Colorectal Cancer survivors and advocates will ring the opening bell on NASDAQ—representing 1.2 million colorectal cancer survivors in the U.S. who are only going to get louder as our numbers grow. Good news or bad news? Both, really. As Boomers age, more Americans will get cancer—and with better treatment and earlier diagnosis, there will be more cancer survivors. In just 10 years, the number of cancer survivors in the U.S. will increase by nearly a third—to almost 18 million survivors of all types of cancer

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