We are proud to be a member of the following coalitions:
Alliance for a Stronger FDA
Over the past two decades funding for the Food and Drug Administration (FDA) has lagged behind other public health agencies in terms of Federal Funds.
The Alliance for a Stronger FDA is made up of a diverse group of organizations who interests are affected by decisions made at the FDA.
The Coalition has two main goals; (1) making sure the FDA has sufficient resources to protect patients and consumers and (2) maintaining public confidence and trust in the FDA.
The Coalition also has support from a number of leading public health advocates including former Health and Human Services Secretaries Tommy G. Thompson, Donna E. Shalala and Louis Sullivan, as well as six former FDA Commissioners.
- Implementation of the Medicare prescription drug benefit;
- Adequate funding for biomedical research;
- Development of appropriate systems of care for cancer survivors;
- Initiatives to enhance the quality of cancer care;
- Insurance coverage of off-label uses of cancer drugs; and
- Improvements in the process for approval of new anti-cancer therapies.
The Cancer Leadership Council
The Cancer Leadership Council (CLC) was formed in 1993 by eight cancer patient organizations that wished to voice the concerns of cancer survivors during the debate on reform of the health care system. At that time, the CLC focused on initiatives that would guarantee cancer survivors access to high quality care provided by cancer specialists.
Over the last eight years, the CLC has grown to 33 groups as additional cancer patient organizations, professional societies, and research organizations have joined the CLC’s collective policy and advocacy efforts. The agenda of the CLC is set by the participating organizations, and CLC positions represent the consensus of the groups. The CLC participants bring diverse points of view to the group, and the activities and issues that engage the CLC have broadened. Despite the CLC’s expanded numbers and activities, however, the CLC agenda remains patient-centered.
The CLC is engaged in a wide range of issues, but they relate to a fundamental goal of ensuring cancer patients access to high quality care. Issues of ongoing concern to CLC members include:
Coalition for the Advancement of Medical Research
The Coalition for the Advancement of Medical Research (CAMR) is the nation’s leading bipartisan pro-cures coalition. Comprised of nationally recognized patient organizations, universities, scientific societies, and foundations, CAMR’s advocacy and education outreach focuses on research toward developing better treatments and cures for individuals with life-threatening illnesses and disorders.
More than 100 million Americans suffer from cancer, Alzheimer’s, diabetes, Parkinson’s, spinal cord injuries, heart disease, ALS, and other debilitating diseases and disorders for which embryonic stem cell research provides great promise. CAMR is dedicated to being a national, collective voice on Capitol Hill and in the media for those who believe that regenerative medicine, including embryonic stem cell research, holds the key to providing American families with hope for the future.
National Colorectal Cancer Roundtable
The National Colorectal Cancer Roundtable (NCCRT) is a national coalition of public, private, and voluntary organizations whose mission is to advance colorectal cancer control efforts by improving communication, coordination, and collaboration among health agencies, medical-professional organizations, and the public. The ultimate goal of the roundtable is to increase the use of proven colorectal cancer screening tests among the entire population for whom screening is appropriate.
Through its collective efforts, the roundtable will:
- Strengthen the network of public and private organizations concerned with promoting colorectal cancer screening.
- Determine clinical and consumer barriers to screening through research.
- Assess current public awareness of and interest in screening.
- Develop and disseminate health messages.
One Voice Against Cancer
One Voice Against Cancer (OVAC) is a collaboration of national nonprofit organizations representing millions of Americans, delivering a unified message to Congress and the White House on the need for increased cancer-related appropriations.
OVAC’s united front enhances each organization’s ability to attain the funding levels necessary to win the war on cancer and to equip those facing cancer with the tools they need to fight this deadly disease. One Voice Against Cancer commits its participating members to cooperative efforts that increase understanding of the need for both cancer research and application programs. At the same time, One Voice Against Cancer empowers its volunteers and those touched by cancer to deliver this message creatively and powerfully to policymakers.