Today, the Government Accountability Office (GAO), announced the appointment of 19 members to the Board of Governors for the new Patient-Centered Outcomes Research Institute (PCORI or the Institute). The Institute was created by the Affordable Care Act to set comparative effectiveness research priorities, establish research methods, and communicate research results to the public.
The PCORI Board appointed today includes three patient and consumer representatives. One of those representatives is Ellen Sigal, PhD, Chairperson and founder of Friends of Cancer Research, a cancer research think tank and advocacy organization. Ms. Sigal’s term on the Board will expire in September 2016.
The Colorectal Cancer Coalition is a member of Friends of Cancer Research and congratulates Ms. Sigal on her appointment. Nancy Roach, founder and Colorectal Cancer Coalition Board Chair released a statement congratulating Ms. Sigal on her appointment:
“Ellen’s engagement in both the policy and science of research make her an excellent choice. The Colorectal Cancer Coalition looks forward to working with the Board in advancing comparative effectiveness research for the benefit of patients.”
Gene Dodaro, Acting Comptroller General of the United States and head of the GAO announced the appointments.
“The research to be developed by PCORI has the potential to improve the quality of health care for people across the nation,” Dodaro said. “This outstanding group of individuals brings an impressive range of knowledge, expertise and professional experience to this important initiative.”
About the Patient-Centered Outcomes Research Institute
The Affordable Care Act established PCORI as a non-profit organization to help patients, payers, physicians and other stakeholders make medical decisions by providing them with evidence-based research.
The Institute Will Help Identify, Fund Research Initiatives
Institute Is Likely to Influence Coverage Decisions
The Institute will carry out a variety of functions, including:
- identifying national priorities for research by taking into account factors of disease incidence, prevalence and burden in the United States;
- establishing a 15-member methodology committee to develop and periodically update scientifically based methodological standards for research conducted through the institute;
- funding and conducting research with federal agencies, academic centers and institutions, and other entities;
- disseminating findings to all stakeholders in an understandable manner; and
- ensuring transparency by requiring public input.