Pat Steer

We are glad to welcome advocate Pat Steer to the Fight Colorectal Cancer Research and Treatment News.  She’s been living with stage IV rectal cancer since 2004.  A writer, she’s blogs about her life with cancer, training her beloved dogs, and her passion for good food at Life Out Loud.

Since my cancer diagnosis in 2004, my life has been full of choice and decisions. Cancer forces you to prioritize. Some days, it has seemed like cancer and treatment were calling all the shots in my schedule, changing my plans, and forcing decisions I didn’t want to have to make.

But I’ve made a few choices in the last eight years where I didn’t let cancer force my hand. I train and show dogs, and that’s very important to me. Early on, I decided to make attending my favorite dog shows a priority. I kept up my now-25-year tradition of camping with friends at a local show circuit. I entered a special event dog show held on New Year’s weekend, 2005 – three shows in 48 hours that wore me out, but was so worth the effort.  I covered Westminster in 2008 through 2010 for my column.

All of those decisions meant that sometimes I prioritized dog shows in spite of my treatment schedule. My oncologist, who once told me “I want you to live your life,” carefully moved my treatments around to accommodate the things I really wanted to do. After all, what good is surviving cancer if you can’t do the things you love? Read the rest of this entry »

This weekend, Congress completed work on a large spending bill that maintains funding for colorectal cancer research and prevention. In the current budget-cutting environment, holding the line on research and prevention programs is a remarkable accomplishment and reflects the power of grassroots advocacy.

I congratulate the Fight Colorectal Cancer volunteers who took action this year to protect colorectal cancer research and prevention funding. We should be proud of our achievements, but we cannot become complacent. We must prepare for the Fiscal Year 2013 budget battle that lies ahead. Please register to attend Fight Colorectal Cancer’s Call-on Congress next March – where advocates from around the country will be urging their legislators to continue to protect colorectal cancer research funding.

The following are the spending outcomes on Fight Colorectal Cancer’s three appropriations priorities:

Read the rest of this entry »

Obese people on Medicare  now have the opportunity to have regular weight loss counseling paid for when offered by a primary care provider.  Since this is considered prevention, there is no co-pay.

On November 29, the Centers for Medicare and Medicaid Services announced that there was enough evidence that intensive behavioral counseling was reasonable and necessary to prevent disease or disability and that Medicare beneficiaries were entitled to coverage as a preventive service.

This is particularly good news for people trying to prevent colon or rectal cancer since studies have consistently found a link between body mass index (fatness) and colorectal cancer, including the World  Cancer Research Foundation which included BMI and colorectal cancer in their 2007 comprehensive analysis reported in  Food, Nutrition, Physical Activity and the Prevention of Cancer. Read the rest of this entry »

President Barack Obama signed an Executive Order yesterday addressing the drug shortage issue.

As we have reported extensively on www.FightColorectalCancer.org, the current drug shortages have impacted colorectal cancer patients who have been unable to get 5-FU, leucovorin or on occasion, irinotecan.

The Executive Order does not change the law, and it will not help patients who cannot get their drugs today, but it does reinforce the powers of the Food and Drug Administration to take steps that would ease the burden by:

• Broader reporting of when a manufacturer has stopped producing a drug that could lead to a shortage.
• Increased effort to review drug suppliers and manufacturing sites and changes. It also directs the FDA to prioritize its resources according to the burden of the shortage to the public health.
• Collaboration with the Department of Justice to address drug stockpiling and price gouging.

If you missed the FDA Webinar on Drug Shortages last Friday, you can

Watch a video of the entire presentation, including questions.

Download the webinar slides.

The webinar, led by Captain Valerie Jensen, R.Ph., Associate Director for the FDA’s Drug Shortage Program, discusses how the FDA responds to drug shortages and what they are doing to try to prevent shortages of medically necessary drugs. Read the rest of this entry »