Tag Archives: Advocacy

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What Doesn’t Kill You – A Story From Call-on Congress

What Doesn’t Kill You – A Story From Call-on Congress

by Bunny Terry They say (the pundits, singers and entertainers) that what doesn’t kill you makes you stronger. I’m pretty sure they were referring to cancer and its survivors. Songs with that phrase have been used as background music for several videos of cancer patients getting stronger in the face of this ever-present and devastating disease. The phrase definitely hits home for me. My Story I was diagnosed with stage IV colon cancer in November 2012. After my diagnosis, I contacted every person I knew who believed in prayer. I asked for everyone’s best thoughts. I did everything my oncologist recommended and then when he suggested a visit to MD Anderson

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Happy: Recap of Day 3 of 2014 Call-on Congress

It may sound strange that the #1 song on Billboard’s Top 100 this week, “Happy” by Pharrell Williams, became the go-to song on our playlist this week at Call-on Congress. But there’s no other way to put it. Crazy, I know. Last night a room full of people who’ve faced the “c” word, some of us multiple times, danced in a conga line to the song – a repeat of what happened a few nights prior. A crowd made up of people who represent loved ones that passed away or caregivers of those physically unable to make the trip celebrated in unison. The reasons to be unhappy were many, yet

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Simply Amazing: Recap of Day 2 of 2014 Call-on Congress

It’s difficult to encapsulate today through a blog post and a few photos we snapped. Today will definitely go down in the Fight Colorectal Cancer history books as one of the greatest days we experienced as an organization. Not only did we participate in events that escalated our cause and confirmed that colorectal cancer is a national priority. We got to share in the moments amongst all of our advocates attending Call-on Congress. Here are a few highlights of the day: ASCO building – we trotted through the snow this morning and entered a jaw-dropping, beautiful meeting space at the American Society of Clinical Oncology (ASCO) building. Advocates heard from

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Excited Advocates: Recap of Day 1 of 2014 Call-on Congress

It might sound odd to explain the mood of getting over 80 people from all across the country together to talk about colorectal cancer as exciting – but that’s exactly the word that encapsulates the day. At the end of Day 1, there’s a sense among all of us that big things lie ahead over the next 48 hours. And that’s not just because tomorrow some of our team will meet at the White House and speak at a National Press Conference… or that Rep. Donald Payne, Jr. will join us and address our advocates personally. Although those items on tomorrow’s docket are extremely exciting, the overwhelming sense of excitement comes

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5 Ways To Be an Advocate From Home This Week

So a trip to DC wasn’t in the cards for you? No worries – hundreds of colorectal cancer advocates are at home right now. Good news – you can still be an advocate this week! Social media has transformed the way our elected officials hear from us. By doing your part from home, you amplify the message of those meeting face-to-face with members of Congress and their staff this coming Tuesday. Here are 5 things YOU can do to be involved this week: 1. Rev Up Those Social Media Accounts We’re asking you to lend your social media accounts to the cause. That means we need you to get on Facebook,

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Rep. Payne, Jr. Addresses House and Thanks Our Advocates

Today Rep. Donald M. Payne, Jr. stood before his colleagues and encouraged all of us in the colorectal cancer community. With his blue star pin fastened on his lapel, he honored the memory of his father, the late congressman, who passed away from colorectal cancer exactly two years ago today. Rep. Payne, Jr. thanked the President for declaring March 2014 as Colorectal Cancer Awareness Month. He thanked his colleagues for co-signing his letter to President Obama asking for the proclamation. And then he thanked you. Our advocates. Watch the video below and be encouraged, advocates. Your work has not gone unnoticed. Rep. Payne, Jr. made sure to speak of it today.

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How Advocacy Helps Me Carry on the Memory

by Michell Baker At the time of my father’s diagnosis, I was living in beautiful sunny San Diego, CA without a care in the world. Life was good, so I thought……… In July of 2007, we found out our strong, sensitive, humble father had colon cancer. Just hearing the word cancer was a huge blow to the stomach, and then days later finding out that it was stage IV cancer was a complete body blow. In August, I flew home to Portland, OR for my daddy’s surgery. It removed a portion of his colon and some lesions on his liver.  The waiting room was full of family and friends to

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Seniors and the Screening Loophole

“But doctor, I thought screening for colorectal cancer was covered by Medicare!?” Our seniors are facing policy loophole that lands them with an unexpected bill. In a recent report, Colonoscopy Screening After the Affordable Care Act: Cost Barriers Persist for Medicare Beneficiaries on the colonoscopy copay issue by AARP, there continues to be a debate about what portion of a preventative service a patient should be responsible for. For our seniors, prior to the implementation of the Affordable Care Act (ACA), Medicare beneficiaries typically incurred some level of cost sharing for health care services they received. For example, they were responsible for Part B premiums, Part B Deductibles, and a 20 percent coinsurance

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Meet the One Million Strong – Paula T. from Texas

Be a part of One Million Strong and tell us how colorectal cancer has impacted your life! Share your story now!  MEET PAULA Paula Thomas, Survivor From Fort Worth, TX PAULA’S STORY I was initially diagnosed in 2011 with stage II colon cancer through a routine age 60 colonoscopy. My age 50 colonoscopy was clean, and I have no history of colorectal cancer in my family that I know of. Upon my diagnosis, I had a colectomy of the cecum area, and continued my life as an active employed adult professional. No chemo was taken as odds of recurrence were only 15 percent, I was told. Guess what…the cancer did reoccur,

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