Important information to know – from screening to diagnosis for colorectal cancer

Posted by Mary Miller on March 18th, 2013

Tips From a Member of Our Medical Advisory Board

AL BENSON-150x150Al B. Benson III, MD, FACP FASCO is Professor of Medicine, Feinberg School of Medicine,  and Associate Director for Clinical Investigations, Robert H. Lurie Comprehensive Cancer Center, Northwestern University

One of the nation’s most respected experts in colorectal cancer, Dr. Benson has supported and worked with Fight Colorectal Cancer for years as an active member of our Medical Advisory Board.

 

Written by Dr. Al Benson, March 18 2013, Chicago, Illinois

Although March is Colorectal Cancer Awareness Month, this disease is so frequent yet in most cases preventable that we should be striving every month of the year to make even more people aware of the importance of colorectal cancer and colorectal cancer screening. The good news is that we are seeing a trend that showing more people are getting screened and more people are surviving this disease. Even so, we have much more work to do to prevent and treat colorectal cancer.

Important information to know – from screening to diagnosis for colorectal cancer:

1) Know your family history. In some cases, colorectal cancer risk is inherited and the genetic risk can be passed on to generations within a family. For those with a risk for inherited colorectal cancer, genetic counseling and testing is strongly recommended. Also if you have an immediate family member who has had colorectal cancer, your risk for developing the disease is greater. Let your doctor know about the details of your family history. If you are unsure of your family history, discuss it with your relatives to be as complete as possible.

2) If you are of African-American descent, you are potentially at higher risk for developing colorectal cancer and screening should begin earlier, at age 45.

3) There is growing recognition that obesity, diabetes and lack of exercise are contributing factors to the risk of developing colorectal cancer and these risks should also be discussed with your doctor.

4) Talk with your doctor if you experience bleeding from the rectum. Many people assume bleeding is “just hemorrhoids,” which might be true, but it also could be a sign of colorectal polyps and/or cancer. Discuss any bleeding with your doctor as well as other symptoms including change in bowel habits (e.g., recent but persistent diarrhea and or constipation), persistent abdominal pain, weight loss or loss of appetite, or increasing fatigue.

5) If you are diagnosed with colorectal cancer, make sure you ask which members of the medical team will be important for your care. A gastroenterologist, surgeon, medical oncologist, radiation oncologist (for rectal cancer), nurse, nutritionist, psychologist, social worker, financial counselor, genetic counselor are some examples of team members who you may really need to help with your diagnosis and treatment.

6) Ask if you are a potential candidate to participate in a clinical trial. All of our current therapies and advancements in the treatment of colorectal cancer have come about because people through the years participated in a clinical trial. Oncologists consider clinical trials to be one component of the standard of care. Further advances in colorectal cancer treatment will require many people willing to enroll in our clinical trials.

7) There are resources available for you. Fight Colorectal Cancer has great information available for you. The National Comprehensive Cancer Network (NCCN) has created guidelines for treatment used around the world by health care professionals. There is a patient version of colorectal cancer guidelines  that you can obtain on the internet and bring to your doctor.

I hope some of these tips will offer you and your family some additional guidance as we continue our efforts to control this common cancer.

Capitol Hill Countdown – One Week | 2013 Call-on Congress

Posted by Danielle Ripley-Burgess on March 12th, 2013

fight-colorectal-cancer-call-on-congressNext Monday morning, you will find me nursing a hot cup of airport coffee as I head to Washington DC for the 2013 Call-on Congress – Fight Colorectal Cancer’s 7th Call-on Congress event.

I will be recapping each day on the blog so that all advocates (near and far) can stay in the loop and take action during Call-on Congress 2013.

I’m sure I will also find ways to add my survivor voice into the mix, along with the voices of the other 80+ attendees.

Oh – and I might crack a poop joke or two. Consider yourself forewarned!

First time for everything

This will be my first time at the event. The buzz surrounding the 2012 Call-on Congress peaked my interest and made me want to get involved:

  • 2012-call-on-congress-groupover 60 advocates on Capitol Hill from over 22 states
  • more than 85 meetings in Congress
  • powerful speakers and training sessions by Dr. Jon Chung, a postdoctoral fellow at the Johns Hopkins University School of Medicine and Dr. John Marshall, the clinical director of oncology at Georgetown University Hospital
  • recognition of  Rep. Charlie Dent (PA-15) as Fight Colorectal Cancer’s 2012 Congressional Champion fortwo key pieces of colorectal cancer legislation, including the Fight Colorectal Cancer Stamp Act (H.R. 893) and theRemoving Barriers to Colorectal Cancer Screening Act of 2012 (H.R. 4120)
  • empowering and inspirational training sessions and seminars that encouraged attendees to continue fighting colorectal cancer after the event

… The photos from the celebration dinner looked pretty fantastic, too!

belle-colorectal-survivor-famiily

Creating awareness, remembering those lost…

We’ve got a full house this year (and are crossing our fingers we all fit into the training rooms!)

The motivation for each person’s participation doesn’t only give me goosebumps … it makes me realize the many ways colorectal cancer can impact someone’s life.

Some are coming as survivors like me. Others are caregivers. Widows. Advocates. Sons. Daughters. Best friends. Researchers.

Just look at some of the reasons the attendees signed up:

  • My father passed away from colon cancer this year. I want to make a difference and fight for late stage cancer research.
  • To learn the latest in CRC community and issues.
  • To raise awareness about how a colorectal cancer diagnosis affects the entire family.
  • I have supported my wife through every step of this journey.  This issue has become very important to both of us and I want to continue to support her and the cause.
  • Push my legislators to sponsor or co-sponsor targeted colorectal cancer bills & approve authorizations for targeted cancer research.
  • I want to help break down the stigma associated with this nearly preventable disease.
  • I am attending Call on Congress to continue to raise awareness about colorectal cancer, specifically in young adults and I hope to articulate to my members of Congress the importance of family history, symptoms at any age, and screening!
  • I want to tell my story that it is not only an old man’s disease as I was 38 at time of diagnosis. Need to educate people.
  • I feel it is important for me to tell the story. Education and awareness may help lead to funding.

Oh…

And we’ve even got kids that will be sporting the Fight Colorectal Cancer t-shirts, ready to tell their representatives how colorectal cancer touched their lives.

Prepping for an amazing week…

danielle-fight-colorectal-cancerI have no doubt that my life will be radically changed as I brush elbows with others who fight colorectal cancer next week at Call-on Congress.

Others who are part of One Million Strong. Others who’ve committed their lives to the awareness, advocacy and cure of colorectal cancer.

I cannot wait to descend on Capitol Hill and tell you all about it. Be looking for more posts as I explain exactly what we will do,  how the process works and how YOU can get involved.

I’m pumped to use my survivorship and voice to make a difference …

if it does have me drinking coffee in an airport next Monday morning at 4am.

 

The Power to Prevent Colorectal Cancer is In Your Hands

Posted by Tavia Gilchrist on February 27th, 2013

You can make a difference in the fight against colorectal cancer wherever you are!

Use our ONE MILLION STRONG TOOLBOX as a guide for how to get involved now in the fight against colorectal cancer.

Do you have a smart phone? Do you tweet? Post Instagram pictures? Are you on Facebook?

Join our social media campaign to let your friends, family, and coworkers know why it’s so important to get screened for colorectal cancer.

3 ways you can help:

On Twitter:

  • Follow us.
  • Tweet about why you are strong, observations and photos using the hashtag #1MilStrong and tag @FightCRC

On Facebook

  • Like us.
  • Post photos, updates, and videos to our wall.
  • Post your best muscle shot as your profile picture.

On Instagram:

  • Share, tag , and tweet your photos with @FightCRC and #1MilStrong

On YouTube:

  • Capture your feats of strength. Record a quick video, upload to your video library and tweet it using #FightCRC. We’ll “Favorite” it on our channel.
  • End your video with a declaration, “I AM STRONG!”
  • Post our videos on your blog, website or Facebook page.

On March 1st and throughout the month, use your Facebook status, tweets and Instagram pictures to let everyone know that March is National Colorectal Cancer Awareness Month.

Take our online pledge to build awareness about colorectal cancer and become an advocate to speak on behalf of the one million survivors living in the United States.

Stay connected with us throughout the year.

Congressional Call-in: If you can’t make it to Washington for Call-on Congress, call 866-615-3375 on March 20th to contact your congressional members about why it’s important to protect funding for research and screening.

Fight Colorectal Cancer News Blogs: Visit Fight Colorectal Cancer’s News Blogs: Advocacy News Blog, Research News Blog, and Community News Blog to get the latest policy news from Capitol Hill, to learn more about research updates and about how to cope with side effects, and more.

The Power of One Million Strong blog: At The Power of One Million Strong, connect with other survivors and families affected by colorectal cancer and share your personal stories of strength and perseverance. YOUR story matters – united we are One Million Strong!

Make a Donation: Support biomedical research and the fight against colorectal cancer. Visit http:/link.fightcrc.org/donate or mail your tax-deductible donation to 1414 Prince Street, Suite 204, Alexandria, VA 22314.  Please make your check or money order payable to Fight Colorectal Cancer.

Monthly Webinars: Fight Colorectal Cancer hosts free webinars once a month led by medical experts. Topics include the latest treatment options, diet and nutrition and issues that patients care about most. Visit Fight Colorectal Cancer webinars to sign up or to listen to previously recorded webinars.

Newsletters: Sign up for our quarterly newsletter for the latest news in treatment, research and advocacy.

One Million Strong Times Square Kickoff!

Posted by Danielle Ripley-Burgess on February 25th, 2013
one-million-strong-nyc-times-square-event

Join us in Times Square on March 1!

What better way to turn on March’s spotlight to colon cancer than an event in NYC’s Times Square!

If you own a smart phone, tweet or use Facebook please join Fight Colorectal Cancer for our One Million Strong kickoff on March 1.

Live in NYC? Even better.

Click here if you live or work near NYC.

Click here if you live elsewhere but still want to help!

Read on to learn how YOU can show the world why YOU are part of One Million Strong.

 

Times Square. March 1. Be There.

Live or work in NYC? Our team at Fight Colorectal Cancer needs YOU!

Here is the roundup of activities planned for the One Million Strong kickoff on March 1 in Times Square. Come before work, during your lunch break, after work or anytime in between!

Come share your story. Bring a friend, too!

Please register for the Times Square events if you can volunteer or participate. (No costs involved… we need to know how many to expect.)

Sponsors…

A special THANK YOU to our event sponsor, Bayer, and board member David Wicks, Vice President of the NASDAQ MarketSite, for making our One Million Strong kickoff in Times Square a reality!

Times Square Event
Details Time
Today Show &
Good Morning America
Sign Holders

Help us tell the early birds sipping coffee and watching morning shows that March
is colon cancer awareness month! Come hold signs at the Today Show and GMA that promote the One Million Strong event kickoff in NYC.

We will have the signs. You bring the blue.

6:30am
Free Yoga Class by Lululemon 

Show NYC that the colorectal cancer community is STRONG! Come to Times Square for a FREE yoga class!

Lululemon will provide yoga mats for use during the class. Simply show up and be ready to have fun! Blue Hair is optional.

Sign up for a FREE spot at the class.

9am & 3pm
Times Square
Opening Ceremony

Celebrate the launch of Fight Colorectal Cancer’s One Million Strong Campaign.Walk through the 20 ft. Prevent Cancer Super Colon. Dance. Take pictures in our photo booth. Show the world you are STRONG.

9:30am
Lunch Dance Party Come out for a high-energy fitness class/dance party! Make a statement to the world that colon cancer is preventable, treatable and beatable! Bring your friends and family! 12pm
Survivor Photo Are you a colorectal cancer survivor near NYC? Come be a part of our survivor photo in Times Square! 2pm
Strong-Arm Contest Impress our partners at Global Strong Man Gym! 2:30pm
Closing Ceremony in Times Square Celebrate the closing of our Times Square kickoff. Winners of photo contest announced! Hear the President of Fight Colorectal Cancer and take the One Million Strong pledge.Our 5-minute PSA will play on the NASDAQ boards in Times Square during the closing ceremony. 4:15pm

Not in NYC? Not a problem.

Even if you will not be in NYC on March 1, help us kick off colon cancer awareness month on March 1. Share your story. Speak up. Take action.

About One Million Strong Campaign

Did you know over one million colorectal cancer survivors live in the United States? Our One Million Strong campaign raises awareness of colorectal cancer and encourages action.

We demand a cure!

Take a commitment to courageously raise awareness, be an advocate and encourage others to join the fight against colorectal cancer.

Take the pledge now!

Cancer-Related Fatigue: Real, Treatable, and Under-Treated

Posted by Mary Miller on January 8th, 2013

Life-altering fatigue will affect 80% of people getting chemotherapy or radiation therapy, plus most people who have metastatic cancer, and even many survivors long after treatment is done.

Yet fatigue in cancer patients has been under-reported, under-diagnosed, and under-treated, according to an expert panel convened by the National Comprehensive Cancer Network (NCCN) a decade ago to recommend cancer-related fatigue treatment guidelines.

Some good news: A recent Dutch study published in the Journal of Clinical Oncology found that advanced cancer patients can get significant relief from serious fatigue, when their fatigue and other symptoms are regularly monitored and treated according to guidelines.

Some less good news: A small U.S. study published in Support Care Cancer found that even at an excellent cancer center, most metastatic cancer patients did not get any of the recommended treatments for even severe fatigue. Read the rest of this entry »

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