GAO Announces Members of the Methodology Committee of the Patient-Centered Outcomes Research Institute

Posted by Catherine Knowles on January 21st, 2011

Today, Gene Dodaro, Comptroller General of the United States and head of the U.S. Government Accountability Office (GAO), announced the appointment of the following 15 individuals to the Methodology Committee of the Patient-Centered Outcomes Research Institute (PCORI).

Read the rest of this entry »

The Traveling Advocate Flies . . .and Flies . . . and Flies

Posted by Kate Murphy on January 19th, 2011

“Thank you for what you said.”

“Thanks for your comments.”

Words heard over and over in elevators, hallways, and coffee breaks in the last couple of weeks, as Colorectal Cancer Coalition research advocates spoke out during research-focused meetings … appreciation expressed for the reality-based voices of patients as research gets planned and evaluated.

We’ve been busy with three different meetings in the last ten days . . . and a big one coming up.
Read the rest of this entry »

Health Reform Progress Report

Posted by Catherine Knowles on October 6th, 2009

Catherine Knowles is C3′s new Director of Policy

The health care reform debate continues.  Last week, the Senate Finance Committee discussed Senator Baucus’s proposal and considered hundreds of amendments.  The Committee will hold a final vote on the proposed bill later this week.  This will allow the Congressional Budget Office (CBO) time to complete its analysis of the bill and provide a final cost estimate.  After the Finance Committee has approved the bill, it will be combined with the bill from the Senate Health, Education, Labor and Pensions Committee before it is scheduled for a vote on the floor by the full Senate.

C3 has been closely following the various health reform proposals introduced in Congress, because access to care is critical to preventing, treating and beating colorectal cancer.  Please feel free to share your thoughts with us by leaving comments below.

Continue reading for more information on some of the amendments adopted by the Senate Finance Committee that C3 thinks are important for people living with colorectal cancer.

Read the rest of this entry »

Colorectal Cancer News in Brief: July 10

Posted by Kate Murphy on July 10th, 2009

Research this week finds FDG/PET able to predict response to chemotherapy even after one treatment, and chemotherapy before surgery for liver mets makes CT scan evaluation less accurate.

Finding the best imaging methods to diagnosis and monitor cancer and comparing new colorectal cancer screening technologies to current standards are among recommended priorities for comparative effectiveness research (CER).  The FDA reports new egg safety rules and the recall of a powdered dietary supplement.

Videos of cancer patients are now online discussing the emotional impact of their diagnosis in The Day I Found Out. Read the rest of this entry »