Tag Archives: Lynch syndrome

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Meet the One Million Strong – Sarah H. from Ontario

Meet the One Million Strong – Sarah H. from Ontario

MEET SARAH Sarah Howe, survivor St. Catharines, Ontario SARAH’S STORY On March 28, 2014 I began experiencing intense stomach pain that I brushed off as “normal” because I had just given birth to my third child two days prior.When the pain persisted, and was still occurring after two weeks, I decided to go to the ER. The doctor said it “might be a kidney infection,” and gave me a prescription for antibiotics. The next day I went back and another doctor said, “You probably just tore muscles from labor.” I fought with the pain for four more weeks before going back to the ER, where a doctor refused to even look

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Advocate Spotlight: Suzan’s Thoughts On ASCO

by Fight CRC advocate Suzan Mayberry ASCO – WHAT AN EXPERIENCE What a privilege to attend the 2014 ASCO (American Society of Clinical Oncology) conference at McCormick Place in the windy city of Chicago. This conference was every bit of exciting as my first day of university. People from all over the world were there, and McCormick Place was so huge. Some of the sessions held more people than any class at university. The crowd was filled primarily with doctors and oncologists, but some were not, like me. I am an advocate for Fight Colorectal Cancer (Fight CRC). As an advocate, Fight CRC encourages me to continuously expose myself to the

Webinar Wrap-Up – Family First – Genetic Syndromes by Heather Hampel

Patients, caregivers and family members use our webinars each month to learn more about the battle against colorectal cancer and find the news they need to stay informed. At Fight Colorectal Cancer, we believe that education empowers those affected by colorectal cancer to take control of their lives. Below is Q&A with Heather Hampel, our presenter of the webinar “Family First: What You Need To Know About Genetic Testing, Family History & Colorectal Cancer.“   Q&A with Heather Q: I would like to know when my children need to start getting colonoscopies. (They’re 32 and 25). Also would like to know if there is any connection, at all, between an astrocytoma brain tumor and

May 2014 Webinar: Family First – What You Need to Know About Family History & Colorectal Cancer

Have you and your family discussed your family’s medical history? Did you know that 10-15% of all cancers are familial, and 3% of all colorectal cancers are due to a syndrome called Lynch Syndrome? Having Lynch Syndrome puts you at an 80% increased risk of developing colorectal cancer. Tune into this webinar to learn more about Lynch Syndrome and other inherited syndromes as they relate to colorectal cancer. Presented by: Heather Hampel, MS, CGC Ohio State University Comprehensive Cancer Center Ms. Hampel has been a cancer genetic counselor since 1995 and is a faculty member in the Division of Human Genetics. Her clinical duties include providing comprehensive cancer genetic consultations to

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Excited Advocates: Recap of Day 1 of 2014 Call-on Congress

It might sound odd to explain the mood of getting over 80 people from all across the country together to talk about colorectal cancer as exciting – but that’s exactly the word that encapsulates the day. At the end of Day 1, there’s a sense among all of us that big things lie ahead over the next 48 hours. And that’s not just because tomorrow some of our team will meet at the White House and speak at a National Press Conference… or that Rep. Donald Payne, Jr. will join us and address our advocates personally. Although those items on tomorrow’s docket are extremely exciting, the overwhelming sense of excitement comes

WE STILL DO – LEANA AND STEVEN

Leana & Steven have lived through “in sickness and in health.” Read their story and why they are doing a “virtual” vow renewal leading up to our One Million Strong kickoff in NYC! FROM LEANA: I met my husband, Steven, when I was in Junior High School. A mutual friend introduced us. Before you knew it we were “going together.” Who would of ever thought that we would get married when I was 18. That was 32 years ago this March. I like to say we have had time to “mold” each other into the person we wanted. Well there was no molding for the life changing diagnosis of colon

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Meet the One Million Strong – Natia Porter from New York

Be a part of One Million Strong and tell us how colorectal cancer has impacted your life! Share your story now!  MEET NATIA Natia Porter, Family New York, NY NATIA’S STORY Lynch syndrome or (wrongly called) non-polyposis colorectal cancer runs in genes from my mother’s side. It is wrongly called because it predisposes us up to 8 different types of cancers on a different degree. The first, the almost 99% predisposition is to colon caners, then uterus cancer, renal cancer, ovarian, brain and so on.  In my family, as I later discovered, there has been many colon cancers, many uterus cancers, some renal and one-brain cancer cases. However, I did not

Annual Texas Barbecue Competition Raises Lynch Syndrome Awareness

There’s just one place in Texas where you will find a silent auctioned beer tube, inflatable colon to walk through and some of the best barbecue cooks in the state. So if you’re near the Dallas area, make sure you put the annual Steve Mayberry Memorial Cookoff on your calendar for Sept. 6-7, 2013. Because as they say, everything’s bigger in Texas. And our entire team at Fight Colorectal Cancer is drooling over this yearly fundraiser coming from the Lone Star State. A great reason to BBQ The 2013 Steve Mayberry Memorial Cookoff will mark the 3rd year of awareness and fundraising for colorectal cancer research and education. The competition memorializes Steve

Nov 2012 Webinar: Talking Turkey about Lynch Syndrome

Brian Mansfield, a music critic for USA Today, didn’t know he had Lynch syndrome until he was diagnosed with colorectal cancer earlier this year at the age of 48. After his diagnosis, he began talking with his family about their health history, “then the family tree lit up like a Christmas tree.” Brian is chronicling his journey through a weekly USA Today online column, “My Semicolon Life.” – Were you diagnosed with colon or rectal cancer before the age of 50? – Was anyone in your family diagnosed with colon cancer before the age of 50? – Was anyone in your family diagnosed with uterine (endometrial) cancer before the age

March 22: Lynch Syndrome Hereditary Cancer Public Awareness Day

Fight those Cougars! Colon, ovarian, uterine, gastric, renal, and skin cancer. All Lynch syndrome related cancers, and all significantly increased in families with Lynch syndrome mutations. Brain and small bowel cancer risks are also higher. In addition, new evidence finds that pancreatic and breast cancer are also part of Lynch syndrome. Today, people living with Lynch syndrome come together with researchers, genetic counselors, and healthcare professionals to spread the word that Lynch syndrome can be managed. But first it needs to be recognized. Awareness saves lives. Careful family histories and routine testing after surgery can identify people who have one of the genes that cause Lynch syndrome. When you find

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