This project was the brainchild of Dr. Tom Marsilje, a stage IV survivor and scientist, best known on the web as the “currently incurable scientist” or simply “Dr. Tom.” He worked alongside advocates Maia (Cee Cee) Walker and Jana Downing, who shared his vision to create a tool putting patients at the heart of the clinical trial search and curation process. A partnership with Fight Colorectal Cancer allowed this invaluable tool to reach more patients.
This finder can help patients with “MSS” colorectal cancer get a potential list of clinical trials to discuss with their medical teams. The tool is “version 2” of a spreadsheet begun by stage IV patient and scientist Dr. Tom Marsilje. Dr. Tom took his personal spreadsheet and made it public for all patients battling CRC. This tool was launched in 2017, in partnership with Fight Colorectal Cancer. Read the news release. Watch a video about Tom and why he created this tool.Visit the Late Stage MSS-CRC Trial Finder
All potential MSS-CRC patient-enrolling trials found on ClinicalTrials.gov are reviewed and posted to this finder by Fight CRC research advocates. The tool is not a comprehensive list of all CRC clinical trials – only those that would be most interesting to a patient with MSS-CRC, such as Dr. Tom himself. The trials that display in the search results are based on Tom’s review criteria:
- Trials with a “reduced” chance of potential failure
- Trials with the biggest “potential” long-term benefit
“As a patient, I had no interest in participating in a trial which had both the highest risk of failure as well as limited long-term benefit, even if the experimental therapy worked as designed. I knew that I may only have one shot at a trial, so I wanted to choose that trial wisely and make that potentially single shot count the most!” – Dr. Tom Marsilje