HEROIC Registry for Lynch Syndrome

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The HEROIC Registry is a patient-centric genetic database that will enable patients to take an active role in furthering research into Lynch syndrome genetic mutations. The HEROIC Registry allows patients to contribute medical information and their experiences living with Lynch syndrome and its associated cancers to help researchers develop new treatments, understand the various Lynch genetic mutations, write medical papers and conduct further studies and clinical trials. Your data can shape the types of research studies to be conducted that are most beneficial to you – the patient.

By participating in the registry, you can share as much health information as you want, when you want, and with whom you want. You control who views it, what information you would like to share and which research studies you are willing to participate in. Your medical data will remain secure. Your privacy is protected with cutting-edge technology.

Questions? Please contact AliveandKickn.