Federal Policy2025-03-07T15:57:27+00:00

Federal Policy

We are on the ground in Washington, D.C., educating policymakers and ensuring the
colorectal cancer community is represented when and where policy is created.

Federal Policy

We are on the ground in Washington, D.C., educating policymakers and ensuring the colorectal cancer community is represented when and where policy is created.

Our Federal Policy Priorities

Our priorities are driven by the needs of the colorectal cancer community, and we work relentlessly to drive meaningful change for all patients/survivors, caregivers, and loved ones and to engage the community in our work. We are dedicated to advocating for policy change that can bring us closer to a world without colorectal cancer.

Our Federal Policy Priorities

Our priorities are driven by the needs of the colorectal cancer community, and we work relentlessly to drive meaningful change for all patients/survivors, caregivers, and loved ones and to engage the community in our work. We are dedicated to advocating for policy change that can bring us closer to a world without colorectal cancer.

Colorectal Cancer Research

Federal research dollars are disproportionately low for colorectal cancer, despite its significant burden. While many cancers have seen major advancements in therapies and treatments, colorectal cancer patients today are still receiving many of the same drugs that were used in the 1980s. A top priority for Fight CRC is advocating for increased funding for colorectal cancer research, and ensuring that all patients have equitable access to clinical trials.

Colorectal cancer research is underfunded by the federal government. Fight CRC is advocating for the creation of a Colorectal Cancer Research Program within the Department of Defense (DoD) to secure additional dedicated funding for colorectal cancer research.

The National Cancer Institute (NCI) is the largest federal funder of colorectal cancer research. Research at the National Institutes of Health (NIH) and NCI has helped lead to better screening techniques and improved treatment options. Increased funding is needed to continue advancing colorectal cancer research.

Fight CRC works with our partners across the healthcare community, including a coalition of patient organizations called One Voice Against Cancer, to advocate for increased funding for the NIH and NCI.

Clinical trials are not a last resort; they are an important treatment option for many patients. They also can address quality of life and symptom management, genetics and personalized medicine, and survivorship and long-term outcomes. For many patients however, participation in clinical trials is not possible due to barriers like costs associated with travel and taking time off work.

Fight CRC partners with the American Cancer Society Cancer Action Network and many other organizations to advance the Clinical Trial Modernization Act which would provide financial support to patients to help ensure that cost and geographic location are not barriers.

Colorectal Cancer Research

Federal research dollars are disproportionately low for colorectal cancer, despite its significant burden. While many cancers have seen major advancements in therapies and treatments, colorectal cancer patients today are still receiving many of the same drugs that were used in the 1980s. A top priority for Fight CRC is advocating for increased funding for colorectal cancer research, and ensuring that all patients have equitable access to clinical trials.

Colorectal cancer research is underfunded by the federal government. Fight CRC is advocating for the creation of a Colorectal Cancer Research Program within the Department of Defense (DoD) to secure additional dedicated funding for colorectal cancer research.

The National Cancer Institute (NCI) is the largest federal funder of colorectal cancer research. Research at the National Institutes of Health (NIH) and NCI has helped lead to better screening techniques and improved treatment options. Increased funding is needed to continue advancing colorectal cancer research.

Fight CRC works with our partners across the healthcare community, including a coalition of patient organizations called One Voice Against Cancer, to advocate for increased funding for the NIH and NCI.

Clinical trials are not a last resort; they are an important treatment option for many patients. They also can address quality of life and symptom management, genetics and personalized medicine, and survivorship and long-term outcomes. For many patients however, participation in clinical trials is not possible due to barriers like costs associated with travel and taking time off work.

Fight CRC partners with the American Cancer Society Cancer Action Network and many other organizations to advance the Clinical Trial Modernization Act which would provide financial support to patients to help ensure that cost and geographic location are not barriers.

Prevention and Screening

Colorectal cancer is one of just a few cancers that is preventable with screening. There are approximately 44 million people in the U.S. that are eligible for colorectal cancer screening, but as many as 1 in 3 are not up to date with their screening. Fight CRC relentlessly advocates to ensure that all patients have access to the screening method that best fits their needs with no out-of-pocket costs.

The CDC’s Colorectal Cancer Control Program works to increase screening rates across the U.S. in communities most in need. Fight CRC is working with our congressional champions to increase funding for the Colorectal Cancer Control Program and ensure more people can benefit from this important program.

Non-invasive colorectal cancer screening tests are key tools to help increase screening and ultimately help prevent or catch colorectal cancer early. But if a patient receives an abnormal result, they must get a follow-up colonoscopy to complete the screening process.

Fight CRC successfully worked closely with our partners at the state and federal level to ensure that patients have access to that follow-up colonoscopy at no cost. Now we have to make sure that policy is effectively implemented so that patients see the benefit!

Colorectal cancer screening is not one and done. Whether it is a colonoscopy or a non-invasive test, it is important to continue to get screened at a regular interval as recommended by your doctor. There are multiple effective screening modalities, some that require a follow-up colonoscopy if a patient receives an abnormal result. Additionally, new technology and innovation provide patients with a growing number of options to complete screening in the way that is best for them.

Fight CRC advocates with partners across the cancer space to ensure that patients have access to the full continuum of colorectal cancer screening.

Prevention and Screening

Colorectal cancer is one of just a few cancers that is preventable with screening. There are approximately 44 million people in the U.S. that are eligible for colorectal cancer screening, but as many as 1 in 3 are not up to date with their screening. Fight CRC relentlessly advocates to ensure that all patients have access to the screening method that best fits their needs with no out-of-pocket costs.

The CDC’s Colorectal Cancer Control Program works to increase screening rates across the U.S. in communities most in need. Fight CRC is working with our congressional champions to increase funding for the Colorectal Cancer Control Program and ensure more people can benefit from this important program.

Non-invasive colorectal cancer screening tests are key tools to help increase screening and ultimately help prevent or catch colorectal cancer early. But if a patient receives an abnormal result, they must get a follow-up colonoscopy to complete the screening process.

Fight CRC successfully worked closely with our partners at the state and federal level to ensure that patients have access to that follow-up colonoscopy at no cost. Now we have to make sure that policy is effectively implemented so that patients see the benefit!

Colorectal cancer screening is not one and done. Whether it is a colonoscopy or a non-invasive test, it is important to continue to get screened at a regular interval as recommended by your doctor. There are multiple effective screening modalities, some that require a follow-up colonoscopy if a patient receives an abnormal result. Additionally, new technology and innovation provide patients with a growing number of options to complete screening in the way that is best for them.

Fight CRC advocates with partners across the cancer space to ensure that patients have access to the full continuum of colorectal cancer screening.

Access to Care

Colorectal cancer does not affect all groups equally. Colorectal cancer incidence and mortality is higher among American Indian and Alaska Native individuals and non-Hispanic Black individuals, and rural Americans are more likely to be diagnosed with and die from colorectal cancer than those in urban areas. Advocating for policies that ensure all patients have equitable access to high-quality colorectal cancer care to reduce these disparities is at the heart of all the work we do at Fight CRC.

Oral Chemotherapy Parity2025-02-26T20:04:41+00:00

Scientific breakthroughs have changed the way cancer is treated, and many new cancer drugs are administered orally, but health care coverage policies have not kept up with these innovations. Many health insurance plans require that cancer patients pay higher out-of-pocket costs for oral cancer medicines than those that are injected or administered intravenously.

As a member of the Coalition to Improve Access to Cancer Care (CIACC), we are advocating for policies that ensure that colorectal cancer patients have access to the best treatments, regardless of how those treatments are administered.

Quality of Care2025-02-26T19:56:22+00:00

We are working to ensure that all those affected by colorectal cancer have access to the highest quality of care. We cannot improve that we don’t measure, and we are working with our partners to develop new ways to measure and improve the quality of care and patient outcomes.

Fight CRC brought together partners across the colorectal cancer space to develop the Colorectal Cancer Care Initiative (CRCCI). The CRCCI put forward a set of goals around screening, treatment initiation, biomarker and genetic testing that serve as tools for health systems and the CRC community to assess progress, identify gaps, and make meaningful improvements.

Access to Care

Colorectal cancer does not affect all groups equally. Colorectal cancer incidence and mortality is higher among American Indian and Alaska Native individuals and non-Hispanic Black individuals, and rural Americans are more likely to be diagnosed with and die from colorectal cancer than those in urban areas. Advocating for policies that ensure all patients have equitable access to high-quality colorectal cancer care to reduce these disparities is at the heart of all the work we do at Fight CRC.

Oral Chemotherapy Parity2025-02-26T20:04:41+00:00

Scientific breakthroughs have changed the way cancer is treated, and many new cancer drugs are administered orally, but health care coverage policies have not kept up with these innovations. Many health insurance plans require that cancer patients pay higher out-of-pocket costs for oral cancer medicines than those that are injected or administered intravenously.

As a member of the Coalition to Improve Access to Cancer Care (CIACC), we are advocating for policies that ensure that colorectal cancer patients have access to the best treatments, regardless of how those treatments are administered.

Quality of Care2025-02-26T19:56:22+00:00

We are working to ensure that all those affected by colorectal cancer have access to the highest quality of care. We cannot improve that we don’t measure, and we are working with our partners to develop new ways to measure and improve the quality of care and patient outcomes.

Fight CRC brought together partners across the colorectal cancer space to develop the Colorectal Cancer Care Initiative (CRCCI). The CRCCI put forward a set of goals around screening, treatment initiation, biomarker and genetic testing that serve as tools for health systems and the CRC community to assess progress, identify gaps, and make meaningful improvements.

Caregiving and Survivorship

Colorectal cancer has a lasting impact not just for those in active treatment, but also for caregivers and those who have completed treatment. We work to advocate for policies that ensure patients and their caregivers are supported throughout their colorectal cancer journey.

Colorectal cancer can continue to have a significant impact on life long after active treatment ends, and cancer survivors need lifelong support. Fight CRC works closely with partners in the cancer advocacy space to promote issues that are important to cancer survivors like the Comprehensive Cancer Survivorship Act (CCSA).

Early onset colorectal cancer patients/survivors can face additional challenges such as fertility issues, financial toxicity, and educational or career disruptions. We partner with organizations across the young adult cancer space to engage with policymakers on issues affecting this community.
Caregivers are a critical part of the care team for patients facing a colorectal cancer diagnosis, but caregivers often do not get the support they need to best care for the ones they love. Colorectal cancer caregivers can experience lost wages and incur other hardships as they take care of loved ones. We engage with policy makers to advocate for additional support for cancer caregivers.

Fight CRC is working with our advocacy partners to advance legislation including the Alleviating Barriers for Caregivers (ABC) Act, to reduce unnecessary roadblocks that stand between colorectal cancer caregivers and essential resources and benefits that will aid them in support of their loved ones, and the Credit for Caring Act, which would create a federal tax credit to help family caregivers address the financial challenges of caregiving.

Caregiving and Survivorship

Colorectal cancer has a lasting impact not just for those in active treatment, but also for caregivers and those who have completed treatment. We work to advocate for policies that ensure patients and their caregivers are supported throughout their colorectal cancer journey.

Colorectal cancer can continue to have a significant impact on life long after active treatment ends, and cancer survivors need lifelong support. Fight CRC works closely with partners in the cancer advocacy space to promote issues that are important to cancer survivors like the Comprehensive Cancer Survivorship Act (CCSA).

Early onset colorectal cancer patients/survivors can face additional challenges such as fertility issues, financial toxicity, and educational or career disruptions. We partner with organizations across the young adult cancer space to engage with policymakers on issues affecting this community.
Caregivers are a critical part of the care team for patients facing a colorectal cancer diagnosis, but caregivers often do not get the support they need to best care for the ones they love. Colorectal cancer caregivers can experience lost wages and incur other hardships as they take care of loved ones. We engage with policy makers to advocate for additional support for cancer caregivers.

Fight CRC is working with our advocacy partners to advance legislation including the Alleviating Barriers for Caregivers (ABC) Act, to reduce unnecessary roadblocks that stand between colorectal cancer caregivers and essential resources and benefits that will aid them in support of their loved ones, and the Credit for Caring Act, which would create a federal tax credit to help family caregivers address the financial challenges of caregiving.

Ready to turn your pain into purpose? Stay updated on all the opportunities to get involved.

Ready to turn your pain into purpose? Stay updated on all the opportunities to get involved.

Building Champions in Congress

Colorectal Cancer Caucus

  • Every state and district in the United States is impacted by colorectal cancer. We need our champions in Congress to reflect that.
  • The Congressional Colorectal Cancer Caucus is a voluntary, bipartisan coalition of Members of Congress united in the fight against colorectal cancer.
  • The Caucus works collaboratively to raise awareness about colorectal cancer among members of Congress and staff, lead the charge in educating Congress on critical colorectal cancer issues, and drive momentum for policy changes that improve lives and outcomes.

Building Champions in Congress

Colorectal Cancer Caucus

  • Every state and district in the United States is impacted by colorectal cancer. We need our champions in Congress to reflect that.
  • The Congressional Colorectal Cancer Caucus is a voluntary, bipartisan coalition of Members of Congress united in the fight against colorectal cancer.
  • The Caucus works collaboratively to raise awareness about colorectal cancer among members of Congress and staff, lead the charge in educating Congress on critical colorectal cancer issues, and drive momentum for policy changes that improve lives and outcomes.