Scanxiety
Scanxiety
Scanxiety is the term we use to describe “scan anxiety.” It’s used to describe the anxious feeling you get about upcoming cancer scans.
The scanxiety definition originates from a Time Magazine article of the same name. “Scanxiety,” by Bruce Feiler appeared in the June 2, 2011, issue of Time Magazine.” Feiler defined scanxiety as,“the anxiety and/or distress associated with an imaging test in postcancer follow-up, both ahead of the actual examination and up to the announcement of the test results.”
CT scans, blood tests, and other diagnostic and follow-up tests are all a part of fighting colorectal cancer. But they can cause immense worry, stress, and anxiety. So, what do you do? Because you can’t skip your scans. Here are a few tips.
Plan ahead
Talk to your doctor before the tests and scans take place. Be sure to ask:
- What is the scan or test?
- What may the scan results mean?
- When will you hear back with the scan or test results? How will you receive the results?
- How long it will take to get your results and why?
Keep Your Schedule
Sticking to your routine can distract and prevent you from pacing around the house, dwelling on the scan results. Go to work, or take your morning walk. Continue to carry out life and live as normally as you can. This may help keep your mind off the upcoming tests, and it can stop you from endlessly refreshing your online patient portal for the results, or waiting for the phone call.
Move
Get some fresh air. Go outside. Get some activity. Not only can exercise take your mind off the potential test or scan results (hello, distraction!) but it’s also really good for you, and it helps fight any fatigue. Exercise releases endorphins, which can also help naturally lower stress levels.
Try Something New
This may be a great time to try something new where you are able to be mindful and stay in the moment. Are you interested in a paint and sip class? How about giving a new recipe a shot? Maybe think about learning a few phrases in a new language. Or you could try yoga or meditation. Doing something new is a great way to focus on the present, which may keep your mind off the upcoming scans for a bit.
Talk It Out
Talk to someone you know and trust. Find someone who won’t minimize your feelings and your fears, and someone who won’t offer unsolicited advice. Talking about what you’re going through and even your fears of your approaching tests or scans can help a lot. While friends and loved ones can be great for this, so can your counselor or therapist.
Survivor Advice for Facing Scanxiety
We asked survivors in our community for their tips on coping with scanxiety.
Scanxiety is very real for me. MRIs include a heavy dose of Valium. I have scans every three months. My scanxiety flares up every time I see the appointment on my calendar.
My sleeplessness starts the week before the scan. MRI and PET scans are the worst for me because I am claustrophobic. I take two Valium before the scan, and I have a driver! I also keep my eyes closed the entire time in the tube.
For the MRI, I prep by playing MRI sounds on YouTube and lay under my covers with a weighted pad on my pelvis to try and simulate the experience.
I then try to not look at the report until I meet with my oncologist. However, this is usually a big fail on my part since I sometimes do not meet with my oncologist for a couple of days. The report is usually available within an hour.
Being 10 years out has not made my scanxiety any less agonizing. I’m scanned every six months, and I still get weak in my stomach. My white blood count never returned to normal after chemo. So, I’m always wondering ‘What if?’
I’m 2.5 years with no evidence of disease (NED). I am getting scans and labs every six months. I’ve told my oncologist that I have anxiety about recurrence, and I asked him for Ativan. However, my anxiety starts up about a week before scans. It’s worse the few nights before the scans. It’s hard to sleep, and I can’t turn my brain off. Therapy is good and helps because we are able to talk about ‘What if the cancer comes back?’ And how it would be handled. Exercise has kept me sane through cancer and COVID.
I just try really hard to stay in the present moment with work and kids. I saw a yoga therapist for a few months, not necessarily for anxiety but for overall wellness. She helped me learn to meditate and breathe. We’d talk about all the things happening in life. She helped me learn to focus when things were scattered.
But there are other times when I feel anxious and instead of focusing I just get lost in a TV show I’ve watched 1,000 times, to detach from real life and put my head in the sand.
So, I get CT scans every six months, and my last one was in August. When I left the imaging center and got into my car, I learned a friend, who had colon cancer, had passed three days prior. So, in addition to the anxiety of waiting for results, I was so sad, and just felt incredibly guilty for being happy when I got the ‘you are still NED’ call.
I get anxious several days before my scans. The night before is the worst. I usually don’t sleep.
You are not alone if you’re struggling with anxiety while awaiting scans for colorectal cancer. If you’re looking for a community who gets it, join our Community of Champions community. We’re here for you.
