LGBTQ+

Disparities in cancer diagnosis, treatment, and survivorship exist in the LGBTQ+ community. With more
than an estimated 1 million LGBTQ cancer survivors in the U.S., it’s essential to understand why the
disparities exist and develop ways to address them.

Fight CRC fights for health equity, which includes fair and equal access for the LGBTQ+ community.

LGBTQ+

Disparities in cancer diagnosis, treatment, and survivorship exist in the LGBTQ+ community. With more than an
estimated 1 million LGBTQ cancer survivors in the U.S., it’s essential to understand why the disparities exist
and develop ways to address them.

Fight CRC fights for health equity, which includes fair and equal access for the LGBTQ+ community.

Lack of data

Unfortunately, many cancer registries do not collect information on sexual orientation and gender identity, making it challenging to know if screening guidelines are being met. This lack of data stunts research and policy development, awareness, and interventions that could address cancer disparities within marginalized communities.

When diagnosed with cancer, LGBTQ+ patients have reported more fear and stigma than other patients because of past negative experiences within the healthcare system and/or fear of discrimination from a provider. In fact, it is still legal in multiple states within the U.S. for healthcare providers to deny care on the basis of a patient’s sexual orientation. Medical teams who are competent in LGBTQ+ cancer care can better meet their patient’s needs.

Sometimes, the best thing for LGBTQ+ people to do is find a culturally competent provider to replace their current physician if there is a sense of judgment and lack of trust. Cultural competency describes knowledge of attitudes, behaviors, norms, and language used across cultures, in addition to awareness of policies that affect different cultural groups. Sexual orientation is part of a patient’s culture.

Lack of data

Unfortunately, many cancer registries do not collect information on sexual orientation and gender identity, making it challenging to know if screening guidelines are being met. This lack of data stunts research and policy development, awareness, and interventions that could address cancer disparities within marginalized communities.

When diagnosed with cancer, LGBTQ+ patients have reported more fear and stigma than other patients because of past negative experiences within the healthcare system and/or fear of discrimination from a provider. In fact, it is still legal in multiple states within the U.S. for healthcare providers to deny care on the basis of a patient’s sexual orientation. Medical teams who are competent in LGBTQ+ cancer care can better meet their patient’s needs.

Sometimes, the best thing for LGBTQ+ people to do is find a culturally competent provider to replace their current physician if there is a sense of judgment and lack of trust. Cultural competency describes knowledge of attitudes, behaviors, norms, and language used across cultures, in addition to awareness of policies that affect different cultural groups. Sexual orientation is part of a patient’s culture.

Tips for Healthcare Providers

Data suggests that at the time of diagnosis, many people on the oncology team do not know about a patient’s gender identity and/or sexual orientation. Being aware of these things is important to reduce patient anxiety, to direct patients to resources that are culturally appropriate, to avoid misgendering, and to be considerate of the patients’ emotional support team, which is often composed of friends versus family members.

When providers and oncology teams invite patients to bring their whole self to appointments it fosters trusting and positive relationships. The result could mean greater adherence to treatment plans and protocols, better outcomes, and improved overall satisfaction.

Tips for Healthcare Providers

Data suggests that at the time of diagnosis, many people on the oncology team do not know about a patient’s gender identity and/or sexual orientation. Being aware of these things is important to reduce patient anxiety, to direct patients to resources that are culturally appropriate, to avoid misgendering, and to be considerate of the patients’ emotional support team, which is often composed of friends versus family members.

When providers and oncology teams invite patients to bring their whole self to appointments it fosters trusting and positive relationships. The result could mean greater adherence to treatment plans and protocols, better outcomes, and improved overall satisfaction.

Find a database of LGBTQ + welcoming providers

Taboo-ty Do Ask, Do Tell Podcast

In Fight CRC’s Taboo-ty Podcast, Paige, an LGBTQ+ patient navigator, and Diogo, a patient navigator for cancer screening, discuss the challenges and barriers that the LGBTQ+ community may face in terms of colorectal cancer screening, misgendering and general access to care. This podcast has great insight regarding the importance of respect, communication, cultural competence and of course, colorectal cancer screening.

Our Resource Library can guide you through a diagnosis. Search our LGBTQ+ Topics.

Additional Resources

Fight CRC Resources

Queer Insights into GI Health
Do Ask. Do Tell. Podcast

Partner Resources

National LGBT Cancer Network
Cancer Care
Cheeky Charity

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Fight CRC Pride Gear