您有罹患大肠癌的风险吗?在 1 分钟内回答这 13 个问题,就能知道答案。
我们的 "临床试验搜索器"(Clinical Trial Finder)是为晚期 CRC 患者查找和了解更多具有影响力的研究的一站式平台。目前的数据适用于同时具有 MSS 和 MSI-H 状态的 IV 期转移性患者。
The Colorectal Cancer Care Initiative (CRCCI), led by Fight Colorectal Cancer, is a coalition of survivors, healthcare professionals and industry innovators uniting to transform colorectal cancer care.
在我们的网上商店购物,无论你走到哪里都能提高人们的意识从T恤衫和腰包到病人教育资源,我们什么都有。
提高认识。成为一个倡导者。举办一个活动。
I was diagnosed with stage I colorectal cancer in 2010. In short order, I was stage IV, in March 2012.
Thank goodness this does not happen to most people.
My family history is heavy with relatives who had colorectal cancer (CRC). Both my granddads died of it in the 1950s; my maternal grandma died of CRC in 1981; and my mom was diagnosed stage III in 1992, although that was not her cause of death.
I am smart. I should have known better, but I waited until I was 50 for a colonoscopy. They found one 7mm polyp and told me not to worry: It looked fine. The biopsy came back positive but only on the surface of the polyp.
I was told this news over the phone while I was at work: not the way anyone should be told.
Back in the day, surgery was optional, not even a suggestion. I opted for surgery to remove that section of colon. The surgeon said everything looked good and not to worry. He would see me in two weeks to remove the stapes.
I went in to have the staples removed, and he told me one of the 20 nodes removed was positive, so he referred me to an oncologist. The oncologist told me I had an 80% of being cured just with the surgery but a 95% chance of survival with 化疗.
I opted for 12 rounds of the oxi cocktail. I was so worried to make sure I got all of my chemo, so I’d be cured, I did 10 rounds at full strength and still have neuropathy to this day. Other side effects from treatment include pain, skin rashes, and increased stress or anxiety.
Fast forward through 14 years as a CRC patient: I have had seven cancer surgeries, chemo, RFA, SBRT, numerous broken bones (related to five years of chemo), a retinal detachment (related to five years of chemo), and most recently, in 2020, VATS.
My tumor biomarkers were tested, and I received the results, but I haven't done anything beyond that.
I have not participated in clinical trials since I am an oligometastatic patient and my team has successfully played whack a tumor.
It has been seven years since I have had chemo, and I am not sure I will do it again if I have another occurrence.
I believe that currently I am NED, although I have learned that does not mean much when you are stage IV.
My advice to someone who is afraid to seek colorectal cancer screening is that testing is a breeze. Prep for colonoscopies isn't "fun" but stage IV CRC is by far worse!
My surgeon set the expectation for me that I should be able to work through chemo, and I did. For me that didn't allow time for a pity party. Staying busy, giving back, maintaining a positive attitude even if I needed medication to do it, avoiding isolation and being my own advocate. Lots of words of wisdom over 14 years from stronger patients than I'll ever be.
Seek second and third opinions.
Something every member of Congress needs to know is that every cancer patient has different needs. Patients need access to the best treatment that is available, where they live. Traveling to distant medical centers causes all kinds issues to both the patient and their families and increases disparities in treatment options for patients.
At age 50 (then the recommended screening age), Julie Krause was diagnosed with stage I colorectal cancer in 2010. In March 2012, she was stage IV. Julie wants members of Congress to know that every cancer patient has different needs. Patients need access to the best treatment that is available, where they live. Traveling to distant medical centers causes all kinds issues to both the patient and their families and increases disparities in treatment options for patients.