What’s Happening on Capitol Hill? May 2013 Update

Posted by Carlea Bauman on May 16th, 2013
United States Capitol Building

United States Capitol Building

Dear Advocates,

Your efforts are making an impact. Every time you exercise your right as a US citizen to communicate with Congress, you are changing the landscape for colorectal cancer patients. We applaud you for your passion and advocacy.

Has Your Representative Cosponsored H.R. 1070? ACTION REQUESTED

Rep. Charlie Dent (R-PA) introduced on March 15 the “Removing Barriers to Colorectal Cancer Screening Act,” (H.R. 1070).The bill would waive Medicare beneficiary coinsurance for colorectal cancer screening colonoscopy when a polyp is removed.  As of May 16, the bill had 28 cosponsors. To find out if your representative has cosponsored H.R. 1070 go to www.thomas.gov and search by bill number.  If your representative has not cosponsored H.R. 1070 please contact your representative’s office at 202-224-3121 and ask for their cosponsorship of H.R. 1070.

Still Looking for a Republican 

Sen. Sherrod Brown (D-OH) has agreed to introduce the companion measure to H.R. 1070 in the Senate. Sen. Brown is expected to introduce his bill in the near future; however, introduction has been delayed with Sen. Brown’s preference to introduce the bill with a Republican.

Kudos to Rep. Charlie Dent

On March 29, the Lehigh Valley News published a letter written by Fight Colorectal Cancer president Carlea Bauman commending Rep. Dent for his leadership on the Medicare coinsurance issue. The letter was submitted in response to a letter published in the paper that criticized Rep. Dent for appearing in advertisements published in the Morning Call and Express Times encouraging Pennsylvanians to get screened for colorectal cancer.  The ads were paid for by the Courtney Anne Diacont Memorial Foundation.

President’s Budget Cuts CDC Colorectal Funds 

In April, President Obama released his FY 2014 budget which would cut nearly $4 million from the Centers for Disease Control and Prevention’s (CDC) Colorectal Cancer Control Program (CRCCP). The CDC estimates that the loss of funding will mean at least five fewer state programs (out of the current 29) working to prevent colorectal cancer. The president’s budget assumes that less federal funding is needed for direct screenings, such as colorectal, breast, and cervical screenings, because most health plans are required to cover these screenings without co-pays or deductibles, and because, starting in 2014, the Affordable Care Act ensures that no one can be denied health insurance because of a pre-existing condition. Fight Colorectal Cancer will be advocating preserving current CRCCP funding levels and will need your help. Stay tuned. (Read Fight Colorectal Cancer’s statement on this issue.)

Fight Colorectal Cancer Meets with CDC Officials

On May 8, 2013, Fight Colorectal Cancer was represented at a meeting with officials from the CDC to discuss how funding for the CRCCP and the National Breast and Cervical Cancer Early Detection Program can be protected in an era of health care reform.

House Lawmakers Support Funding for CRCCP – GREAT JOB ADVOCATES!

Thanks to all the Fight Colorectal Cancer advocates who asked their representatives to sign a letter in support of the CRCCP. The letter was circulated by Rep. Donald Payne, Jr. and called upon appropriators to fully fund the CRCCP in FY 2014. Rep. Payne was joined by 53 of his House colleagues on the letter.

Action on FY 2013 Spending Bills Complete 

In March Congress completed work on FY 2013 spending bills. The Labor-HHS-Education spending bill was finalized as a continuing resolution, meaning that programs, including the CRCCP will be funded at FY 2012 levels through the remainder of the fiscal year which ends September 30. The CRCCP is funded at $43 million which will be subject to sequestration and other rescissions. Fight Colorectal Cancer has learned that state colorectal cancer programs will be notified at the end of June by CDC of their FY 2013 funding allocations.

DoD Cancer Research Program Gets Funding Boost – GREAT JOB ADVOCATES!

In March Congress passed and the President signed into law a FY 2013 Department of Defense spending bill. The bill provides $15 million for the Peer Reviewed Cancer Research Program (a $2.2 million increase over FY 2012).

NIH Takes Cut for FY 2013

The FY 2013, when sequestration and department transfers are accounted for, the National Institutes of Health (NIH’s) FY 2013 budget will be $28.926 billion (compared to $30.623 billion in FY 2012) and the NCI’s budget will be $4 .779 billion (compared to $5.069 billion in FY 2012).

Glimmer of Good News for NIH Funding

In a bit of good news for NIH funding, Sens. Durbin (D-IL) and Moran (R-KS) were successful in including an amendment to the Senate Budget Resolution that would create a deficit-neutral reserve fund that effectively provides a framework for growth of the NIH budget over the next decade. Establishing a reserve fund allows the Budget Committee chair to adjust the budget resolution’s overall spending and revenue limits and the spending allocations for particular congressional committees to ensure that legislation accomplishing a reserve fund’s goal — in this case, increasing funding for NIH research — will not be subject to a procedural bar if it breaches those limits or allocations, so long as the legislation does not increase the deficit.

President’s Budget Offers Slight NIH Funding Increase 

President Obama’s FY 2014 budget request includes an NIH funding increase of $471 million (a 1.5 percent increase) over FY 2012 amounts. The NIH estimates this would result in 351 more research project grants in FY 2014.

Patient Equal Access to Chemotherapy Bill Introduced – ACTION REQUESTED

The “Cancer Drug Coverage Parity Act” (H.R. 1801) was introduced by Rep. Higgins on April 26. The bill requires insurers that cover anticancer medications that are intravenously administered or injected to provide no less favorable coverage for oral anti-cancer medications. Please email your representative to urge him/her to cosponsor this legislation.

Help us make a difference | 2013 Call-on Congress

Posted by Danielle Ripley-Burgess on March 14th, 2013

The 2013 Call-on Congress will be big. Over 80 colorectal cancer advocates plan to attend. Presentations and exercises make for a full agenda. Our legislative priorities will be heard!

But, what if you cannot be in Washington DC with us next week?

Big news – we still NEED your help.

colorectal -cancer-congress-call-in-march-20-2013

United Behind a Cure – Call-in on March 20

Next Wednesday, Fight Colorectal Cancer will join with other colorectal cancer groups to sponsor the United Behind A Cure Congressional Call-in.

While our team of advocates meet with their representatives on Capitol Hill, we need YOU to call and make your voice heard. By calling in, you magnify our message and the power of our advocates on Capitol Hill.

Here’s the scoop:

Please call this number:

1-866-615-3375

It will connect you with your member of Congress. Please tell them:

You support H.R. 1070, a bill in Congress that will cut out copays for screening colonoscopies when polyps are removed.

Your call could make colonoscopy screening available to millions.

Need a reminder?

Click here to add a reminder to your calendar and join our Facebook event.

Help us make sure every person in Congress is aware of colorectal cancer on Wednesday!

Want to know more?

Take a peek at our 2013 Advocacy Handbook…

 

Join One Million Strong

one-million-strong-fight-crcWe continue to recruit people to take the pledge and become part of One Million Strong. Those who pledge make a difference in the fight against this disease. Please help us:

  • Share the pledge with your friends and family, encourage them to join us!
  • Talk about the pledge on Facebook
  • Tweet about the pledge using hashtag #1milstrong and @FightCRC
  • Take a look at the One Million Strong Toolbox

Together – let’s make a difference.

There are over one million colorectal cancer survivors in the United States.

Let’s share our stories and get behind a cure for this disease.

What will we do at the 2013 Call-on Congress?

Posted by Danielle Ripley-Burgess on March 12th, 2013

call-on-congress-fight-crcCall-on Congress harnesses the passion of those impacted by colorectal cancer and helps them make a difference when it comes to the law.

Some of us come as survivors. Others of us sign up as caregivers, widows, researchers, physicians, friends and family. (See some of the reasons the 2013 attendees signed up!)

Regardless of our relationship with the disease, we all fight for the same thing:  a cure. Fight Colorectal Cancer’s 2013 Call-on Congress takes us one step further to that goal.

As the 80+ attendees pack their bags this week and prepare to ascend on Capitol Hill, take a look at what’s in store for the 2013 Call-on Congress.

Inspiration from those United in a Cure

Attendees receive two days of training before the “big day” on on Capitol Hill arrives. Speakers will cover a range of topics that unite the group, motivate to get behind a cure and teach each participant how to tell their story.

An amazing team of speakers will present:

  • Welcome to Call on Congress, Carlea Bauman, President of Fight Colorectal Cancer
  • Advocates are Breaking New Ground, Max G. Bronstein, MPP, Research!America
  • The Power of One, Rodrick Samuels, owner of Profile Barber Institute & CRC advocate
  • Your Roadmap to Colorectal Cancer Research facilitated by Dan Dixon, PhD, University of Kansas Medical Center highlighting:
  • Colorectal Cancer Treatment: How is it moving forward by Johanna Bendell MD, Director of the Gastrointestinal Oncology Research at the Sarah Cannon Research Institute
  • Survivorship: What is the role of research after treatment by Andrea (Andi) Dwyer, Project Director for the Colorado Cancer Prevention and Control Research Network (CPCRN)
  • What’s the destination? A role for advocates by Nancy Roach, Chair & Founder of Fight Colorectal Cancer

Training on the legislative process

call-on congress trainingMost attending the 2013 Call-on Congress do not lobby Congress regularly! That’s why an outstanding team of experts will teach and train our advocates about the in’s and out’s of the system and how to make a difference.

  • Meeting Logistics and Advocacy 101
  • In-depth Review of 2013 Legislative Priorities by Camille Bonta, Fight Colorectal Cancer Policy Expert
    • Discuss our legislative asks/ priorities
    • What are key cost issues and impact of budget cuts
  • Preparing You for the Hill by Christopher Kush, President Soapbox Consulting
  • In-depth Review & Question and Answer by Camille Bonta, Fight Colorectal Cancer Policy Expert
  • How Congress really works: in practice, not in theory by Martin B. Gold, MPA, JD

Discussions to let it all sink in

Experts will lead discussion groups to help attendees process the information and gain further insight:

  • Discussion 1: Understanding the Research Process (Experts:  Andi Dwyer, Project Director for the Colorado Cancer Prevention and Control Research Network (CPCRN) and Dan Dixon, PhD, Associate Professor at the University of Kansas
  • Goal:  Discuss the current research landscape, cost of research, and the importance of advocacy in colorectal cancer research funding.
  • Discussion 2: Understanding the Legislative Process (Experts: Mary Doroshenk, Director, National Colorectal Cancer Roundtable, Camille Bonta, Fight Colorectal Cancer Policy Expert and Carlea Bauman, President of Fight Colorectal Cancer)
  • Goal: Discuss how to influence elected officials, what are key policy issues, and how can you engage legislative initiatives year around.
  • Discussion 3: How Can You Engage Your Own Networks (Experts: Anjee Davis, VP of Programs for Fight Colorectal Cancer,  Michael Sola, VP of Operations for Fight Colorectal Cancer and Devin James, CEO of Devin James Group)
  • Goal: Discuss how you can promote colorectal cancer education to your networks (community members, medical professionals, etc.)

The United Behind a Cure Congressional Call-In

call-congressOn the final day – Wednesday,  March 20 – we pack our bags and head for the Hill.

Attendees will meet with elected officials – some with lawmakers – to share their experience and push for legislative change.

Call on March 20, 2013

Call on March 20, 2013

The cool thing? EVERYONE can participate to make sure the message is heard!

On Wednesday, March 20, call your representative to voice your support of legislative changes our advocates will talk about – be a part of a national advocacy event . . .

Fun? Of course there’s fun!

Our group is unique – we think talking about colon health and lawmaking is fun!

But, we will also participate in activities like dinners, “Mix & Mingles,” interactive sessions and a Celebration Dinner on the final night to round out the week.

Advocates and congressmen, get ready.

We demand a cure for colorectal cancer and will arrive in DC next week prepared to explain how changes to the law will help our goal.

Come to DC for Free!

Posted by Carlea Bauman on November 20th, 2012

Fight Colorectal Cancer is pleased to announce that we will be providing scholarships for advocates to attend Call-on Congress 2013!

Scholarship applicants must be:

  • A voting resident in Arizona, Illinois, Indiana, Louisiana, Ohio, or Wisconsin
  • A colorectal cancer survivor or patient currently in treatment
  • A first time Call-on Congress attendee
  • “Like us” on Facebook

One person from each of the target states listed above will be selected to receive a scholarship to attend Call-on Congress. The scholarships are made possible through a private donation in memory of advocate and friend Joyce Anne Ware Longfellow, who passed away earlier this year. The aim is to help survivors come to Washington, DC and make their voices heard for the first time at Call-on Congress.

The deadline to apply is December 1st.

Get more information and apply today!

 

CDC Mulls Self-Evaluation; Fight Colorectal Cancer Sends Letter of Support

Posted by Carlea Bauman on October 25th, 2012

The Centers for Disease Control and Prevention (CDC) has proposed an evaluation of its federally funded Colorectal Cancer Control Program to determine whether the program does what is it supposed to do: Increase state-level colorectal cancer screening rates and other related outcomes. Read the rest of this entry »

Page 1 of 1012345...10...Last »