哈特利（李）-琼斯将帮助把患者、护理人员和研究倡导者的声音带入研究所以患者为中心的研究工作中。

SPRINGFIELD, Mo. – Aug. 29, 2017 — Hartley (Lee) Jones, stage IV colon cancer survivor and Fight CRC research advocate, has been appointed by the Patient-Centered Outcomes Research Institute (PCORI) as a member of its Advisory Panel on Clinical Trials.

Jones will join other members of the panel in applying his experience and expertise to helping PCORI refine and prioritize research funding alternatives and ensure that the research PCORI supports centers on the outcomes that matter to patients and other healthcare decision makers. PCORI is an independent, non-profit organization authorized by Congress to fund research that will provide patients, their caregivers, and clinicians with the evidence-based information needed to make better-informed healthcare decisions.

Jones was selected on the basis of his experience, expertise, and ability to contribute to the panel’s tasks and responsibilities. Panel members represent a broad range of healthcare stakeholder groups and perspectives, including patients, family caregivers, clinicians, drug and device makers, and researchers, among others.

Jones has been a successful manager and executive in banking, corporate, government, consulting and not-for-profit organizations. He is a late-stage colon cancer survivor and active member of Fight CRC’s Research Advocate Training and Support (RATS) program that’s working to find more effective treatments for colorectal cancer and provide more effective support to patients. As a cancer patient and survivor, he is committed to promoting the patient voice in research, treatments, medical care and the healthcare system in general.

"琼斯说："我很荣幸能被 PCORI 选中，也很高兴能加入他们的临床试验顾问小组。"我很幸运能够在如此致命的癌症中幸存下来，因此我将致力于帮助支持关键性研究，使其他癌症患者能够过上充实而有意义的生活。临床试验是开发新的、更好的治疗方法的关键，我们需要继续想方设法让患者更多地参与试验的设计和实施，以提高招募率、保留率和对患者有利的结果。

关于琼斯加入临床试验顾问小组，抗击结直肠癌协会主席安吉-戴维斯（Anjee Davis）表示、

“Traditionally, scientists have not always engaged patient advocates in the developmental process. But PCORI has uniquely created a contract and grant environment where patient values are parallel to scientific efforts.  We are incredibly proud to see Lee join the PCORI Advisory Panel on Clinical Trials. It is a very important panel, and Lee will have the opportunity to discuss with leaders in the field the patient viewpoint on valued outcomes and represent our communities’ healthy impatience and desire for progress.”

More information about the Advisory Panel on Clinical Trials, including its scope of work and a list of all members, is available on the PCORI 网站。

关于抗击大肠癌

Fight Colorectal Cancer (Fight CRC) is a trusted national nonprofit advocacy organization fighting for a cure. It was founded in 2005 by Nancy Roach, a patient advocate who witnessed the need for colorectal cancer advocacy after her mother-in-law’s diagnosis. The organization plays an important role in rallying colorectal cancer advocates to action. Fight CRC is known for activism and patient empowerment throughout patient, academic, political, scientific, medical and nonprofit communities. With a mission focused on advocacy, research, patient education and awareness, the organization serves advocates in every state of the U.S. and many others around the world. Fight CRC is a 4-star charity by Charity Navigator and 93 cents of every dollar donated goes directly to colorectal cancer programs.