Jason was a tireless champion, seeking his best treatments while being a wonderful husband, father, and friend to so many. Jason went to his eternal rest on November 21, 2023. His passion to help others who are afflicted with this disease inspires so many. It is tragic that science did not move fast enough to save Jason. I and others have vowed to carry forward the mission of accelerating a path to better treatments and a cure, so other individuals and families don't need to suffer as well.

Donor: John Woerner